Fibromyalgia Association UK
Founded in 1994 in Stockport, Cheshire, the association’s office moved to Stourbridge, West Midlands, during early 1997and in 2012 to Paisley, Scotland. The offices are administered mainly by volunteers, most of whom have fibromyalgia.
The association is not a membership organisation. It is administered by the board of trustees, who live in various parts of the UK. There are over 180 registered local support groups and helplines throughout the UK who provide a very significant contribution to supporting local people with fibromyalgia. These are overseen by regional co-ordinators appointed by FMA UK.
The association’s main aims are to help people with fibromyalgia, their families, friends and carers, by the dissemination of information of and to promote research into the cause(s), effective treatments and possible cure for fibromyalgia.
The association has:
- Staged one national and three international conferences
- Continued a benefits advisory service
- Co-ordinated the establishment of an All Party Parliamentary Group on Fibromyalgia (APPG)
- Established The Medical Advisory Board
- Worked with solicitors on post traumatic fibromyalgia litigation
- Published information booklets and leaflets for the general public and people with fibromyalgia
- Published a booklet for medical professionals
- Published a booklet for young people with fibromyalgia
- Established a national helpline
- Become a member of the European Network of Fibromyalgia Associations
- Established a website
- Obtained a Westminster Hall debate on fibromyalgia
- Attended professional conferences to disseminate information in the UK and abroad
- Held annual meetings for local support group leaders
On a daily basis, the association disseminates a great deal of information to sufferers, carers, medical professionals and others and sends out about 10,000 information packs per year, mainly to first time enquirers. The national helpline, website and email also process hundreds of enquiries each month.
Charity No: 1042582