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12May

In true Rosie fashion any worries and anxieties raised in last weeks post were swiftly put to one side (for a short while at least) when she walked across the room for the very first time with the aid of a baby stroller in front of ‘Mummy’ and her physiotherapist.Karen quickly caught the moment on video and sent it through to me at work with the message “Look at our girl!”. I assumed it would be a clip of her standing up holding onto the stroller before dropping to her bum, but when I played the video (edited version below) and saw her walk across the room I’m a little red faced to admit that my jaw dropped and the tears came on, full flow whilst sat at my desk! I had to run out of the studio to compose myself and then proceeded to watch it over and over for the next five minutes! I really didn’t anticipate seeing her do this anytime soon due to her legs and arms still appearing so weak because of her hyper-mobile joints. She has obviously moved on much quicker than I had thought as this huge step shows in itself the improvement of strength to both her legs and arms.I’d like to end this post by sharing one of the simplest and most precious moments I’ve known yet as a parent…Yesterday morning (as is often the case of a weekend), the kids all piled into our bed and we were chatting, having fun, giggling along with Rosie when Joe just suddenly turned to Karen and said:”Thank you Mummy”.”What for?” replied Karen.”Rosie” he said. Rosie-Strolling from The Future’s Rosie on Vimeo.

  

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The Future's Rosie

I'm Tom, a thirty something father to three beautiful children and husband to my soulmate Karen. I started this blog as a means to talk about stuff, get things out in the open, a bit like an online therapy I guess and to celebrate the progress of my beautiful daughter Rosie who was born in March 2011 with Down's Syndrome (DS) and a Complete Atrioventricular Septal Defect (AVSD). Maybe the experiences shared on here will help others too, hopefully help illustrate the bright futures our children with DS will have if we can break down common misconceptions. When I first found out Rosie would be born with DS I found reading literature with open and honest feelings on the subject, extremely helpful. This is not intended to be a written masterpiece and I can promise you it won’t be. I don’t pretend to have a large vocabulary and to be honest the further behind me my school days become the more my grammar has deteriorated!... however, you will find what is written on these pages comes from the heart.

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