rich emollient used in the management of eczema, psoriasis and other dry skin conditions.

Monthly Archives: March 2015



Click the arrow above to watch how Stephen Fry is supporting runners raising money by running the London Marathon

Oh my!  The Virgin Money London Marathon really is getting close!  Sunday 26th April to be precise, or even more precise: 3 long runs, 8 effort runs, 9 recovery runs (or parkruns), 6 rest days, 2x Pilates sessions, 4x swims … Continue reading


I Know My Last Blog Post was the "Final" One But…


I’m using this blog to ask for donations to my Just Giving page because it gets loads more hits than my new blog does. To cut a long story short, I’m running 5k for charity next month and would love … Continue reading


Finding ability through my disability



How are you disabled? Someone asked me the other day, “not to be offensive, but how you are considered disabled, I mean I get why someone in a wheelchair is disabled, but I don’t see you as disabled…?” I understand … Continue reading


Is your bed giving you a good night’s sleep?


woman extending hand to alarm clock yawning lies in bed

Sleep is an important part of our overall health and well-being. Without enough sleep we can be grumpy and irritable, find it hard to concentrate during the day, and will often suffer with other health issues such as headaches, back … Continue reading


FitBit Breakdown: Watch-Profile Models Compared


The current line of FitBit personal activity trackers includes four wrist-worn models: the FitBit Flex, FitBit Charge, FitBit Charge HR, and the FitBit Surge. Although each of them serve a similar purpose, tracking the daily exercise and activity habits of … Continue reading


Call In The Troops


This post is written by Karen Brocker about what it is like to have a daughter with a chronic illness. I got off the phone with a heavy heart. My daughter is suffering and I don’t know the answers to … Continue reading


Should We Fear the Recreational Use of Cough Syrup?


When you think of cough syrup, chances are you think of the over-the-counter kind, the type you take in order to soothe the symptoms of a common cough. For many other people across the U.S. however, cough syrup means “sizzurp” … Continue reading


Food allergies: How to deal with kid’s parties


Dealing with allergies at birthday parties

We have yet another birthday party coming up. I don’t know the parents – or even the child particularly, so we’re instantly on allergy alert. Here’s our list of things to think about when the invite arrives: MyItchyBoy is now … Continue reading


London Youths at Greatest Risk of STIs


With more than 3 million people in London affected by STIs every year, the young people of the capital city are at a greater risk of contracting sexual health problems than any other part of the UK. With serious effects … Continue reading


Just Another Day On Capitol Hill


advocacy blog No, these are not winning lottery numbers. They are also not numbers to a safe combination leading back to an inconspicuous brief case layered with stacks of 100 dollar bills. These numbers have a bigger and much richer purpose. … Continue reading


Proud moments – {March 2015}


There’s a lovely little thing that happens every month in the ‘Future of Downs’ Facebook group.  We celebrate our children’s milestones and share what’s made us proud. We do this on the 21st to represent the three copies of chromosome … Continue reading


Finally, gluten free corn flakes and honey flakes


Finally, #glutenfree corn flakes and honey flakes from nestle

This month, thanks to Nestle, I’ve been trying out their new gluten free honey flakes for breakfast. Finally, #glutenfree corn flakes and honey flakes from Nestle They also now make Gluten Free Corn Flakes so if you are coeliac or … Continue reading


My New Friend


This blog post is written by Karen Brocker.  She writes about what it is like to have a daughter with a chronic illness. When I heard that John was retiring I was in explicably saddened.  What would  I do without John?  … Continue reading


5 Pieces of Technology That Will Help You to Lose Weight Permanently



Promising to get fit and lose weight is the start of a long journey. Far harder is actually sticking to your commitments and following through on your promise. Weight loss requires dedication, motivation and the right information. However, all too … Continue reading


100 unknown chefs and me on Radio 5 Live


Michel Roux tweeted me about allergen regs

If you didn’t read my rant last week in response to the Telegraph article about the letter from 100 top chefs up in arms about the new allergen regulations, where have you been? Social media has been buzzing with irate … Continue reading


My Catch 22 Disease



Ever heard of a catch 22? Well according to, a catch 22 is  “Also known as a vicious cycle – two or more conditions require the other conditions to be fulfilled, but these other conditions also require the original … Continue reading


Packing an everyday bag for your allergy child


Taking antihistamines out

We have a bag for MyItchyBoy that goes everywhere with him.  Over the past few years we’ve learned the essentials we need to keep in there. Ask your local pharmacy if they can sell you a small medicine bottle. Ours … Continue reading


Are You Addicted to Your Chronic Pain Medication? Here’s How to Tell


Blog 4

If you suffer from chronic pain, the risks of not managing it properly can include anxiety, depression, and increased likelihood of suicide. You could even suffer from hormonal complications as a result of uncontrolled pain. But if you’re using prescription … Continue reading


Tangle teezer helped heal scalp eczema


Who would have thought that a simple brush would help so much in the healing of my scalp eczema. I have tried everything from various lovely new natural shampoos, rhassoul clay shampoo, organic scalp oils etc. and whilst these all … Continue reading


How Counseling Can Help You Lose Weight


Losing weight is hard, because it’s rarely just a matter of eating fewer calories and exercising more. In order to successfully lose weight, you also need to change your thoughts and feelings about food and the habits you’ve developed surrounding … Continue reading


Musings of a Sports Nutritionist


Firstly, I need to apologise for not posting in a while… My reason for this is that I’ve been studying hard for a course. I am doing a Postgraduate Certificate in Applied Sports Nutrition at St Mary’s University, and I’m … Continue reading


We can’t fix it but we can sure try!


Enjoy this post written by Karen Brocker as she writes what it is like to be the mother of a daughter with a not so normal life. If you are a parent of a chronically ill child you know the … Continue reading


How to Stay Healthy When You’re a Nurse


As a nurse, it’s your job to care for the physical, mental, and emotional health of your patients. But like many professionals, you might put your own health needs aside. Nurses’ schedules are so hectic and demanding that it’s easy … Continue reading


DripDrop: Great Tasting Oral ReHydration Solution



As a responsible blogger,  I want to let everyone know that this product was provided to me free of charge to try.  All opinion expressed are my honest assessment of the product and I have not been paid to say … Continue reading


Top chefs attack new EU regulations on allergens in food


Is the only really safe thing to eat in a pub a bag of ready salted crisps?

Well this morning the allergic community has been up in arms at recent coverage of the new EU regulations about food allergens. You can read the whole article here in the Telegraph, “EU chefs attack new EU regulations in allergens … Continue reading


5 Subtle Signs That Your Job Might Be Killing You


There’s no denying it: Stress can make you sick. According to one recent publication, which looked at more than 80 studies related to health and stress, there is a clear correlation between stress and physical health symptoms. And if you … Continue reading




‘She needed a hero so that’s what she became’- Anon.  When you think of superheroes who do you automatically think of? Batman or superman? What about wonder woman do we ever think of her?  I know we should include her … Continue reading


Hurry up and WAIT



Enjoy this post written by Karen Brocker as she writes what it is like to be the mother of a daughter with a not so normal life. Part of living with an illness is learning how to WAIT.   We WAIT … Continue reading


Healthy wheat free bread roundup #GF #WF #DF #EF


Gluten, wheat and dairy free bread from the Artisan Bread company

Have you ever looked at the ingredient’s list on gluten free bread and wept for just a simple bread with flour, water,salt and yeast? It seems impossible to achieve and although there are now some amazing gluten free breads on … Continue reading


Preparing for your child’s Allergy Appointment


How to prepare for your child’s Allergy Appointment Check your appointment letter to see whether there will be any tests done on the day – skin prick or blood test. Also check if and when you need to stop giving … Continue reading


Putting on a smile for World Book Day


Looking after my teeth

Today, everybody at the British Dental Health Foundation is celebrating World Book Day! As a charity, we are determined to improve the oral health of children not only across the United Kingdom but all over the world. We believe in … Continue reading


We Attended an Eczema Patient Panel Event and We Liked It


I had a lovely time at the international eczema conference last year and it made me feel all warm and fuzzy inside to be invited to attend the Centre for Evidence Based Dermatology Patient Panel Day this year! That’s right … Continue reading


What to Expect with a CT Enteroclysis



No this is not mine, mine is all screwed up! But you gotta admit this is cool! Friday I had my least favorite test in the world performed.  Well actually it was a double doozie because I had a colonoscopy … Continue reading


No Smoking Day shines light on oral health


No Smoking Day 2015

A new survey of 2000 smokers by the British Heart Foundation (BHF) has found that less than one in two (44%) smokers in the UK are worried about the negative effects of smoking on their teeth, and only in one … Continue reading


Shame on you JK Rowling – asthma is normal, not funny


Have you seen JK Rowling’s The Casual Vacancy recently on TV? The character called Colin Wall (Simon McBurney) who was portrayed as a weak, over-stressed weirdo who had asthma and was always puffing on his inhaler, made my blood boil. … Continue reading


Chichester Pilates Class: Core Pilates Review


Core Pilates Firstly a mild correction, I was slightly misleading on Friday apparently it wasn’t a Fitness Pilates class it was Core Pilates. It was stated as Core Pilates on the timetable but there was no accompanying link to the … Continue reading


10 things only eczema people do


I loved this blog post by Deborah Cicurel for, “17 things you’ll only know if you have eczema”. It made me smile because I do most of those things and because it’s good to smile about our trials and … Continue reading


10 things only eczema people do


I loved this blog post by Deborah Cicurel for, “17 things you’ll only know if you have eczema”. It made me smile because I do most of those things and because it’s good to smile about our trials and … Continue reading