Blog

rich emollient used in the management of eczema, psoriasis and other dry skin conditions.

2Apr

Another Blog post by Karen Brocker about what it is like to have a daughter with a Chronic Illness.

Sarah spends most of her time at school. So when I am with her I am reminded, in a very real way, of what she deals with each day.  For instance, when getting ready for bed she applies numbing cream above her port.  

As she waits the 20-30 minutes for the cream to do its magic I remember……. I remember that she has to stick a big needle into her port. I remember that this has to be done in a sterile environment or she could  get a serious infection.  The fact that she is doing this herself, usually in a DORM ROOM, instead of having it done in a clinic by a liscensed nurse makes it all the more scary.  So, I start to panic, a little.  This causes me to give her “helpful reminders”   aka “worried questions” 

“Did you get the needle in the first try?”

 “ How has your port been flushing?”

“ Can you get a blood return?”

“  Any signs of redness or infection? How is the skin under the dressing doing?” Etc.

Inevitably, and usually annoyed by now, she reminds me that she deals with this everyday and is very aware of all the dangers.   I, however,  am sobered by the reminder of the vulnerability and seriousness of the issues she deals with each day  …… in her not so normal life.

  

Sarah Brocker

Hi my name is Sarah Brocker and I have Crohn's Disease. I've got 8 scars and am missing two feet of intestines and my life isn't normal, but whose life is normal? I want to use my experiences to help you, even if it means sharing embarrassing experiences. I am also looking to break the stigmas associated with IBD in order to make living with IBD just a little bit easier. All I want to do is help, so please, let ME help YOU!

Add a comment

Your email address will not be published. Required fields are marked *