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rich emollient used in the management of eczema, psoriasis and other dry skin conditions.

21Apr

This post is written by Karen Brocker, my mom, about what it is like to have a daughter with a chronic illness.

When you live with a chronic disease you sometimes become accustomed to dealing with serious, even scary,  health issues.  This becomes your new normal and you learn to function as if everything were fine.   

I find myself in a cycle of sorts…. something kind of big happens and I go into a function mode to deal with the immediate needs.  I call the doctor, I pick up meds,  I go to an appointment.   I might even google the issue.  Other than that, though, I am not thinking about it too much.  I am  fitting it into my schedule of tasks and everyday responsibilities.

The next phase of the cycle is that I go into an avoidance phase.  I become a bit obsessed with a project.  I may research  vacation spots.  I decorate. I wish I would exercise obsessively but I’m afraid that has not yet happened. I latch on to anything that provides a mental distraction from the stalking heaviness that threatens to overtake me.  

Eventually, I come to a stand still, aware that my feelings have caught up with me and that it is time to deal with them.  I may weep, cry out to God and even take a nap.  The heaviness settles until it is dispersed by the quietness that comes with acceptance.  I acknowledge the sorrow and  the fear and then soldier on in this journey of my daughter’s not so normal life.

  

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