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31Dec

Recently I experience he best of times and worst of times. It was a Saturday and I broke my ParkRun PB. I also broke a few of my rules for staying alive and faced some pretty starling side effects.

I wasn’t going to share this blog because I prefer to share positive things and messages. And also because quite frankly I’m embarrassed.

But I found it really helpful just to write it down, get my thoughts straight and work out how to avoid it happening again. Then I decided I will share this story because if I can learn from this then you can all perhaps find something of use here and we can all move on. Whether this is of use to you, your family, child or friend, it’s onwards and upwards in 2018.

I am also looking forward to many more Saturday’s in the Cafe in the Park… where this took place and since writing all this down I did actually return, just for a coffee mind you, but it was fine. Absolutely fine. I will go back and talk to the owner and find out if it is safe when it’s quieter but for the time being it’s coffee all the way for me.

Beautiful place for an anxiety attack
Beautiful place for an anxiety attack

So let’s begin. This recent experience resulted in a pretty significant anxiety meltdown which continued for an hours walk around the lakes after breakfast and well into the afternoon.

I was quite upset about it for a while and have had another panic attack since, totally unrelated to food and most perplexing, but I am not giving in to this.
I am not this pathetic crying mess. I am brave and strong and I can do this.

Before you panic, there was no allergic reaction.
I am quite safe… it was just this new fear I am experiencing. Sheer panic and I can’t control it, despite all rational thoughts that I can walk out, not eat anything, stay safe…

It all happened because even though breakfast in ‘Cafe in the Park’ was in my calendar I hadn’t had time to speak to them about what I could safely eat. That is totally my fault, and due to the severity of my allergy I would NEVER EVER turn up during any establishment’s busiest time and demand a safe meal with no prior knowledge about whether this would be possible. I would always phone or email and ensure that I have spoken to staff, preferably the owner or chef, before booking anything anywhere. And if I’m unsure, stick to a very safe option ie. ham, egg and chips or steak and salad or bacon and eggs. Simple stuff. This strategy has served me well.

So on this occasion, being unorganised and just a bit nervous about ordering breakfast in a cafe I brought with me a Tesco Gluten Free and Dairy Free Egg Roll. I figured if everyone else (there were about 8 of us altogether) was eating breakfast and I joined them for a coffee (with no milk) that would be OK. I almost just had a coffee and kept my safe food hidden away.

Before I go on I will just explain, that the last time I ordered breakfast and explained all my allergies was in Palm Springs in September. Unfortunately they omitted to tell me that the gluten free muffin also contained dairy, despite me asking on numerous occasions. The result was the most terrifying experience of my life. Unconscious and rushed to A&E and forever grateful to the friends and experts who looked after me.

So perhaps it’s not a surprise that my trust was lacking and my nerves were raw.

I just wasn’t feeling particularly brave that morning but no one knew how scared I was because I hadn’t told any of my new running friends. I was just really pleased to be invited to breakfast.

Call it bad luck? But when I thought it was quiet enough I tried to sneak out my safe roll to eat.
Unfortunately the owner of the cafe happened to be sitting right next to me and politely explained that I couldn’t eat my own food.

Of all the luck! I was very embarrassed and put the roll away. I completely understand how annoying it just be if customers bring in their own picnic rather than order food.

But I did try to explain to her why I’d done it.

I wasn’t trying to get away without paying.
I would pay double for the privilege to walk into a place and just choose from a menu. Just like that.
I wasn’t being sneaky.
I was just badly organised, very frightened and trying to do my best to stay safe.
I had not planned ahead and was suddenly crippled with the most terrible fear.

I thought it would OK as everyone else was tucking into the most amazing looking breakfasts.

The owner assured me that they could cater for allergies and had lots that I could choose from.
But she went on, and on and for quite some time gave me a little bit of a hard time. I kept saying ‘sorry, I’m not going to eat this,I’m Sorry.’ I gave up trying to explain but she was full of praise for her amazing menu.

I ended up getting very upset and feeling so pressured that whilst I wanted to run away and get out of there, I felt so humiliated with the owner still pressing that they could really feed anyone with any allergy… have our gluten free sour dough she said… again and again, while I sat their crying.

Instead of staying calm, thanking her and promising to do my research for next time, I went up to order breakfast in a busy cafe, shaking with fear and with tears pouring down my face.

Why did I do that? Why didn’t I just compose myself and maybe just ask for another coffee?
Stick to the rules. Stay safe.

Because breakfast and a muffin with undeclared milk was how it all happened before. Never eat bread when you’re out unless you’re read the ingredients. My new rule! Never trust ANYONE.
And the memory, even though I have very poor recall of the whole event, just came flooding back.

So when the server went to check the gluten free sour dough, assuring me that she ‘thought it would be OK’… I totally lost it. Because ‘thinking’ something is OK is not good enough.
I refused the probably safe gluten free sour dough because my life is not worth taking that risk.

I didn’t enjoy my plate of poached eggs and bacon but I can assure you they were very well cooked.
The reason I didn’t enjoy them was because the fear, humiliation and complete embarrassment that I couldn’t control my emotions and the awful knowledge that all my new running friends were watching this silent melt down… kind of ruined it for me.

After we’d finished I could feel myself getting upset again when one of the lovely ladies asked me if I was OK… so I let all my friends leave so that I could get take-out coffee and walk it off around the beautiful lakes.

I am so angry with my emotions because I couldn’t even order a black coffee to take-away without crying. The owner came over to speak to me again and I think then, for the first time perhaps realised just how terrified I was. But I was too far gone by then to hear that they have a full allergen menu so would be able to tell me the exact ingredients in the sour dough. It’s a shame staff hadn’t just offered to show me the allergen menu or that she hadn’t checked for me but hey ho. We live and learn.

Maybe next time I will be able to try breakfast there again and enjoy it. But only after I have checked, read and reread the ingredients in that home made gluten free sour dough.

Cafe in the Park at Rickmansworth Aquadrome have very clearly marked menus and it is definitely a great place to eat out if you have allergies. They have gluten free bread available if you ask and the menu is marked up with the key main allergens.

If I can ever bear to show my face in there again 🙁

Thank you to my ParkRun buddies. Thank you for not making a big thing about it while I lost the plot. Thank you Matt for helping me get the PB and for not even noticing the meltdown 😉 and assuring me that most of the others didn’t either. Thank you for never referring to it ever again… 😉

Yours, struggling, embarrassed but not giving in…

I’m still here, annoying my Mum, blogging and running. Let’s run this fear out of my system.

So why, why when asked how was breakfast at Cafe in the Park by Mum do I lie and say, ‘It was fine’. Why?
Because I was ashamed to admit the truth even to my own mother. Because we are a family who just get on with it. We don’t complain.

Please talk about this to people close to you if you are feeling similar fear. It is not easier to cope with in silence. It is in fact much easier to deal with when you share your feelings.

And you know, I don’t care what anyone thinks. This is not anything to be ashamed about. It has never happened to me before but I have friends who have anxiety and I haven’t truly appreciated how debilitating and terrifying it is.

Being prepared, never putting yourself in that kind of high pressure situation and staying calm sound like easy measures to take but sometimes life jumps up and bites you.

Hope to see you guys soon Cafe in the Park. This is not a bad review in any way. It’s a lovely, lovely cafe but if you plan to eat there with allergies, please phone speak to them prior to going and ask to see the allergen menu. Because this place can be busy, heaving in fact which isn’t great if you need to relay a complicated but important allergy message.

Has anyone else experienced this kind of reaction? What did you do?
Please tell me I’m not going crazy… LOL

  

Ruth

An allergy and health writer and freelance copywriter, Ruth is passionate about helping those with allergies and food intolerances take control, embrace their condition, and learn to live with and love who they are. It can be very lonely finding you have allergies and discovering what helps you can be a life long journey. What works for one person won't work for another, so after trying nearly every allergy treatment under the sun and finding hours of research necessary to keep abreast of what's going on, Ruth started writing her blog, What Allergy? in April 2009. Ruth has life threatening allergies herself to all nuts, all diary, tomatoes and celery and knows first-hand what it's like to have an anaphylactic attack. Voted in the Top 5 UK allergy blogs by Cision UK in 2011, What Allergy is packed full of interesting articles, hints and tips and product reviews which are a must read for anyone with allergies, food intolerances or sensitivities, asthma and eczema. From subjects such as "What is celery allergy?" to "Surviving a holiday abroad with allergies", it's packed with useful and interesting information. You can register free for a weekly newsletter by visiting her website http://whatallergy.com/ and also keep in touch by following her on Facebook and Twitter.

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