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Ray’s posts

Ray

About Ray

My wife has a 'condition'. Many people who have to have labels would say she has dementia. She first attended a memory clinic in 2000, aged 52, and has suffered a marked decline recently. We have been trying to follow the advice of our Guru: 'Live a Good Life'. It's not easy but there doesn't seem to be any better advice around. I found myself saying to a friend that I would find my wife's condition very interesting if I wasn't so involved. I've realised now that I do find it, and the issues it raises, interesting. And that there's nothing wrong with that. It's one of the things that keeps me going. Not that I have any choice. I think more and more that I'm a very rational person (though I'm not claiming that I always behave rationally). I have to try and make sense of things. In my current situation, this is quite a challenge. We all need challenges, they say. I'm hoping this blog might help me, and maybe others, in some way. If I'm wrong, it won't last very long.

New readers catch-up 2: Causes/contributory factors

10Oct

In my effort to try and understand the disease, I’ve looked so far at three possible causes/contributory factors. Unlike some of the stuff that you can find online, these have all been discussed and researched by perfectly reputable scientists, and … Continue reading

  

What are, and what aren’t, symptoms of dementia?

5Oct

This is the title of a section of John Zeisel’s ‘I’m still here’. It’s all very obvious once you’ve read it, but it’s really helpful to have all this set out so clearly. Zeisel differentiates between the primary symptoms of … Continue reading

  

People with dementia have a lot in common with people who don’t

5Oct

This may sound obvious, but it’s interesting to realise that many of the things that people with dementia do, and which sometimes attract comment, are things that people who don’t have dementia also do. Two recent examples that I’ve come … Continue reading

  

Tamoxifen again

5Oct

I’ve blogged about the possible link between Tamoxifen and memory/dementia: here and here.  This is a link to an interesting article on this topic: http://www.sciencedirect.com/science/article/pii/S0091305701006566. Another interesting article  –  see the abstract at the start: http://www.faceblind.org/social_perception/papers/zbasseda/zbasseda-Tamoxifen.pdf Perhaps most interestingly, Tamoxifen appears … Continue reading

  

Beacons of hope

19Jun

This is the title of my latest post. It lists links to other posts which discuss positive and even inspirational things I’ve come across in my search: http://adventureswithdementia.blogspot.co.uk/2012/06/beacons-of-hope.html   +434   

  

Life on hold

9Jun

On online forums carers, and not just carers for people with dementia, complain about their life ‘being on hold’. It’s pretty obvious really  –  life is never on hold. The sun rises and sets, you get a day older, your … Continue reading

  

Accentuate the positives

23May

On the journey from mild cognitive impairment and on through various stages of dementia, discussions with professionals, at which patients are very often present, tend to focus on deficits. I have been very aware of this recently after help from … Continue reading

  

Is a diagnosis necessarily a good thing?

13May

A neurologist is quoted on an online forum as saying to someone who was impatient about the fact that it was taking her so long to obtain a diagnosis: ‘no diagnosis is better than a wrong diagnosis’. So here we … Continue reading

  

It’s not all about suffering……….and imaginary conversations needs to be properly investigated

2May

The admiral nurse pointed this out to me and it fits in so well with the person-centred approach to dementia. She was responding to my saying that S’s ‘conversations’ with the people she imagines are now quite often calm and … Continue reading

  

The lucky one

25Apr

I’m sure that this is a common experience for people in situations similar to mine.  I’ve actually lived alone at various points in my life and mostly I’ve found it O.K.  My current situation is not remotely like that, because … Continue reading