The Future's Rosie’s posts

The Future's Rosie

About The Future's Rosie

I'm Tom, a thirty something father to three beautiful children and husband to my soulmate Karen. I started this blog as a means to talk about stuff, get things out in the open, a bit like an online therapy I guess and to celebrate the progress of my beautiful daughter Rosie who was born in March 2011 with Down's Syndrome (DS) and a Complete Atrioventricular Septal Defect (AVSD). Maybe the experiences shared on here will help others too, hopefully help illustrate the bright futures our children with DS will have if we can break down common misconceptions. When I first found out Rosie would be born with DS I found reading literature with open and honest feelings on the subject, extremely helpful. This is not intended to be a written masterpiece and I can promise you it won’t be. I don’t pretend to have a large vocabulary and to be honest the further behind me my school days become the more my grammar has deteriorated!... however, you will find what is written on these pages comes from the heart.

Welcome to wonderful

1Dec

Yesterday saw the official launch of the Mencap ‘FamilyHub’ – A new online community for parents and carers of children (young and old and yet to be born!) with a learning disability. This will be a great resource for people … Continue reading

  

Dear Rosie, Thank you.

2Nov

In the weeks since the BBC documentary A World Without Down’s Syndrome? there has been a great deal of discussion around the subject. As with any good debate there have been many opinions shared, however there was one comment I read … Continue reading

  

No hidden agenda's

6Oct

Well that was quite something…I  hope those of you that tuned into watch “A World Without Down’s syndrome?” enjoyed it as much as I did. A quote that struck a real chord with me came when the Icelandic geneticist spoke of the manger … Continue reading

  

A World Without Down's Syndrome?

4Oct

Some of you may have noticed (many of you won’t care!) but it’s almost a year since I posted on here. Not something I’m proud of nor ashamed of but it has made it harder each time I approach the … Continue reading

  

You are my sunshine

15Oct

You may have picked up from my last post that little Bud is becoming much more demanding at home and as a result much harder work for us. It’s not so much the behaviour as the relentless need for attention. … Continue reading

  

Summer Respite

18Sep

No sooner did Summer come and it’s already gone. For those of us living in the North there would be a strong case for questioning whether it ever came at all. Thankfully we were fortunate enough to manage two weeks … Continue reading

  

Remember me?!

26Jul

Some of you may (or may not) have noticed but it’s been a fairly epic break since I last wrote a post on here… I decided to take a little break to spend more quality (less distracted) time with my … Continue reading

  

Informed Choice

18Jun

It has been kindly brought to my attention this morning that an image of myself and Rosie is being used in the USA for a ‘pro-life’ article fiercely campaigning against abortion.I’d like to state that if you see any articles … Continue reading

  

One small step for Rosie…

11Feb

Wow what a few weeks we’ve been having with little Budlington! Those that follow on Facebook will be aware that her recent jaunts with her walking aid have reached a whole new level after we walked all the way to … Continue reading

  

Strolling into a new year…

11Jan

This is a very quick post to share the amazing achievement of Rosie over the festive holidays. It’s been a wonderful break for Rosie and family – so much has happened and I have no idea where to begin. The … Continue reading

  

I'm (kind of) Standing – yeah! yeah! yeah!

19Dec

This is likely to be the last post of this year before it’s tools down and chilling out for Christmas. Two fairly major events have happened since I last wrote and seeing as they are both really positive it seems … Continue reading

  

Daddy's Girl

30Nov

I’m not sure why or for what reason but at this particular moment in Rosie’s life she is very much all about ‘Daddy’. This is not to say no-one else gets a look in but we just seem to be … Continue reading

  

Power to the Parents!

20Nov

Last month I was kindly invited by Viv Bennett, Director of Nursing at DoH to partake in their current ‘Week of Action’ by writing this post outlining the power and importance of parent blogging and what motivated me to start ‘The … Continue reading

  

Sorry seems to be the hardest word…

5Nov

So after a few days without my family I sit here babysitting my Godson Marley and his sister whilst his Mum and Dad go out for a well earned meal – it feels a bit like a busman’s holiday to … Continue reading

  

A Double MAD Night

22Sep

*WARNING* This post contains countless clichés! So apologies in advance for a post likely to be packed full of obvious statements but I just can’t find the words to express my total shock at coming away from Friday night’s 2014 … Continue reading

  

Budlington Begins Nursery

10Sep

So last Wednesday the day finally arrived for Rosie to begin nursery school. It’s a day that three years ago we could only dream about. This time in 2011 we were two weeks away from signing the medical forms that … Continue reading

  

Flowering Bud

2Sep

I apologise for beginning this post with an age old cliché but seriously, where does time actually go? Another couple of weeks (and more) have passed since I last wrote and suddenly I find everything happening at once. No sooner … Continue reading

  

Glastonbuddy 2014

14Aug

Well we’re now back from our Summer holidays and I thought it was about time I wrote a post, so here goes…A week and half ago we packed up our car filling every single available space with camping equipment and … Continue reading

  

Mencap Top Talent

16Jul

Well I promised in my last post that I’d let you know how the talk went… It’s been three weeks and I’ve just not managed to find the time for one reason or another. So I apologise for taking so … Continue reading

  

Little Miss Swiss

24Jun

I think I’ve just broken my own record for the longest time between posts! During this time Rosie has been unwell with a chest and ear infection (for over two weeks). It’s been a long time since she’s been under … Continue reading

  

What a team!

19May

Well what can I say about yesterday?I’ve tried thinking of suitable words; Proud, emotional, humbled, grateful, tearful… but nothing comes close to explaining how I really felt seeing everyone, runners of all abilities, in their green Running for Rosie & Friends 2014 … Continue reading

  

Taking a stroll

12May

In true Rosie fashion any worries and anxieties raised in last weeks post were swiftly put to one side (for a short while at least) when she walked across the room for the very first time with the aid of … Continue reading

  

Ever felt like pulling your hair out?

7May

…”Might be a bit of a struggle in your case Tom!” I hear you say. However for Rosie things are a bit different. To be honest with you this post doubles up as a cry for help/advice/reassurance as much as … Continue reading

  

Spring into action!

29Apr

It’s been a busy but brilliant couple of weeks since I last posted an update on here. The long Easter weekend was spent with Uncle’s, Aunts, Cousins and grandparents as we descended on the London branch of the family. On … Continue reading

  

Every little step…

2Apr

Well I’m happy to say we’ve survived March again – without doubt THE most chaotic month of the year in our house. Thankfully all birthdays passed off without too much trouble other than the obvious dent in the the monthly … Continue reading

  

Bud turns three

19Mar

As you may remember from last year March is a truly crazy month in our household with all three of our children celebrating birthdays! Rosie turned three this weekend and we celebrated at home with family and friends, all of … Continue reading

  

Learning to walk and fork

27Feb

Last week we had a visit from Rosie’s physio who said she’d noticed a big difference in her, which is so encouraging to hear, especially from a professional as I often lose sight of how well she is doing – … Continue reading

  

Two today!

14Feb

Remembered at the last minute that the blog is two years old today, seen as I haven’t prepared anything to mark the occasion here is a little ‘off the cuff’ and if I’m honest ‘pretty naff’ poem: 

Roses are Red
Violets … Continue reading

  

Neither up nor down

11Feb

I’m happy to say that Rosie’s biting and face grabbing has subsided quite considerably. Whilst it hasn’t stopped altogether it’s certainly a step in the right direction and we anticipate it disappearing completely in the coming weeks – wishful thinking … Continue reading

  

Bud Bites Back…

14Jan

Thanks to our very generous family and friends Rosie has been well and truly spoiled again this Christmas time. She has plenty of new books and a whole array of new toys to help her move on with her development. … Continue reading

  

Season’s Greetings

23Dec

Christmas is nearly upon us! I have one more day left in work then it’s feet fully up for the festive period – as much as three children will allow anyway! We really look forward to this valuable family time … Continue reading

  

Free Fallin'

5Dec

Those of you that have followed the blog from the start will know how much Rosie loves the Tom Petty tune ‘Freefallin’ (see The Tom Petty Effect). It has become a firm favourite of hers since we discovered at about 11 … Continue reading

  

Ready…teddy…chaos!

21Nov

I’m happy to report that during my short break from writing on here Rosie has remained on top form. She’s had us in fits of laughter, surprised us with some new achievements and pulled on the old heart strings with … Continue reading

  

Ready…teddy…chaos!

21Nov

I’m happy to report that during my short break from writing on here Rosie has remained on top form. She’s had us in fits of laughter, surprised us with some new achievements and pulled on the old heart strings with … Continue reading

  

A little R&R

1Nov

I’ve always promised myself not to write blog posts for the sake of it as I feel it will affect the integrity of what I do, however I am mindful that I haven’t written for a while and wanted to … Continue reading

  

Singing in the train…

9Oct

As Autumn tries its hardest to keep everyone smiling with the late Sun so does our Budlington! We have been away the past two weekends trying our best to string out the good weather and spend some quality family time … Continue reading

  

MAD Night

24Sep

I’m stepping slightly out of my comfort zone here as it’s not my usual post about Rosie and her achievements, it may also be my longest post ever so bear with me! Friday 20th September was the annual MAD Blog … Continue reading

  

She's still standing…yeah yeah yeah!

17Sep

This coming Thursday see’s the second anniversary of Rosie’s life saving open heart surgery at Alder Hey Children’s Hospital. It’s always hard emotionally thinking back to that time. Equally it’s vital that I don’t allow the experience to become nothing … Continue reading

  

Ready…Steady…Go!

1Sep

Just a quick post with some new achievements in the land of Budlington! There have been three significant advances since I last wrote. In a recent post I mentioned about Rosie learning to throw and catch in the garden…well Karen … Continue reading

  

Cornwall, chums and chips

20Aug

It only takes a day or so back in work before the holidays dreamt of all year become a distant memory. We’ve had a wonderful time visiting beautiful Cornwall, bringing back with us some cherished memories of days out exploring … Continue reading

  

Super Bud!

14Aug

I’m extremely honoured to have been asked by Mencap to write this post as part of their annual awareness-raising campaign for Learning Disability Week. This year it is taking place from 19–25 August 2013 and will celebrate people with a learning disability, their … Continue reading

  

Terribl(y cute) twos!

22Jul

Well summer has well and truly arrived and with all this hot weather drying everything up my blog has been no exception! I’m happy to report its nothing other than being a lover of the summer sun. I’ve been spending … Continue reading

  

Major Day Out, Minor Surgery

26Jun

I don’t know whether I’m coming or going at the moment and I’ve been meaning to write a post for ages, so I’ve finally grabbed myself some timeout to write… On Sunday 16th we were kindly invited to enjoy a … Continue reading

  

Chocolate – the way to a girls heart

14Jun

On Wednesday morning Rosie finally (after four cancellations) had her cardio check-up to ensure everything was still as it should be post open heart surgery 21 months ago. As we arrived I took her to the play area thinking she’d … Continue reading

  

Up! Down! Up! Down!

4Jun

It’s been another busy couple of weeks here at The Future’s Rosie HQ! We’ve had half-term chaos and a jaunt down South to celebrate Budlington’s Uncle’s 40th – and celebrate we certainly did (ouch!) Lately I’ve enjoyed sitting back and … Continue reading