Just incase my questions get missed in the bustle of the other sections I thought I would repeat it here, in the correct place.
To recap: young son, ill for many years, diagnosis ME. Relapses constantly after a few weeks of GET. Enforced rest period follows as too ill to do anything else. Then re-starts GET program and relapses. Continue for over a year.
The GET is causing the relapses as there is nothing else occurring at the same time.
School is trying to force a reintegration and are solely focused on the GET program and asking "why isn't he back in school full-time" and medical professionals refuse to offer a letter confirming that ME is a fluctuating illness with relapses etc that make adhering to a strict timetable almost impossible.
My son's bloods show inflammation and infection: how is the GET helping that when there are no other medical interventions?
GET seems to making him worse and when he relapses his symptoms all get worse. What damage is being done to him on each relapse?
I really would appreciate some advice.