Alongside our online clinic on epilepsy in May 2014, we ran an epilepsy awareness survey...

The majority of people said they have confidence in how to act if they saw someone having an epileptic fit.

epilepsy survey results for talkhealthNearly all of the people completing our survey know:

  • it is vitally important not to put anything into someone’s mouth during a fit
  • that you must surrender your driving licence when diagnosed with epilepsy.

An awareness campaign called Purple Day ran on the 26 March 2014, many of the survey respondents were not aware of the campaign. Our survey showed that people feel there is a stigma attached to epilepsy.

Around half of people said they would feel comfortable telling others if they or their child has epilepsy. We hope that our online clinic on epilepsy (May 2014) helps to raise awareness and enables more people to tell others about the condition and how it affects their life. Sudden Unexpected Death in Epilepsy is not something that many people knew about.

We had an equal response of how confident people were with staff management of epilepsy. The majority of adults found their own or their children’s epilepsy is easily manageable on a daily basis. Medication was found to have some success in helping manage the condition.

For a diagnosis to be made there were a range of time periods, the most frequent being a few months.

A key theme about the condition that was difficult is the uncertainty of epilepsy. If they or their child had a fit in public- 42% of people said they felt positively about the experience.

One way of letting other people know that someone has epilepsy is to wear jewellery identifying that the person has epilepsy. Around half of the people completing our survey use this as a method. This may be useful to think about as a way of identifying if someone has epilepsy should you see them have a fit.

If you're interested in a detailed analysis of the results for these surveys please contact us.