Survey results for

May/June: Psoriasis Survey

Following the launch of our psoriasis support programme we wanted to find out more about additional health conditions from those who were diagnosed with psoriasis had and how we could support them further.

According to the World Psoriasis Day consortium, approximately 125 million people currently have psoriasis and studies have shown that between 10% and 30% of people living with the autoimmune disease are also at risk of developing psoriatic arthritis as well.

Psoriatic arthritis is a long-term and progressive condition that can lead to any of the body's joints becoming inflamed, stiff, and painful. It typically affects the hands, feet, knees, neck, spine and elbows which, in severe cases, may require surgical treatment.

Survey participants

We recently surveyed 249 individuals to ask them questions about their psoriasis and any other health conditions or symptoms they experienced alongside their psoriasis. 82% of the panel were female, with 58% of the participants being in the age range of 25-44 years old.

57% of participants would describe their psoriasis as mild, with 34% describing as moderate and 9% as severe.

Additional pain and symptoms

Participants identified various issues that they experienced alongside their psoriasis. Half of the participants (50%) experience heel pain, 49% had a swollen joint and 40% reported having a finger or toe completely swollen or painful for no apparent reason. 32% stated they had holes or pits in their fingernails or toenails and 28% had been told they had arthritis by their doctor.

In addition to pain, participants also identified that they have or had been diagnosed with various health conditions in addition their psoriasis.

Almost a quarter of individuals (21%) said they had sleep apnoea/snoring, 13% inflammatory bowel disease, 9% diabetes, 7% osteoporosis, 6% non-alcoholic fatty liver disease, 5% heart disease, 5% erectile dysfunction, 5% Chronic Obstructive Pulmonary Disease (COPD), 4% coeliac disease and 4% had dyslipidaemia, an abnormal amount of lipids in the blood.

In addition, 3% experienced atherosclerosis, a disease in which plaque builds up inside your arteries, 2% chron’s disease and 2% mentioned uveitis, inflammation of the middle coloured pigmented layer of the eye.

Seeing a GP & additional support

44% of participants said they do not feel like they have adequate support in managing their psoriasis., coupled with 36% not feeling they have adequate support for their other health conditions.

When asked if they felt they could benefit from a free support programme, 56% said they thought it would help if GPs offered a support programme written specifically to help manage their psoriasis specifically.

Participants were asked what information or support they would like, which they thought was currently missing or not available.

Some of the key themes and terms that were highlighted included:

  • Find support
  • Specialist
  • Scalp
  • Condition
  • Creams
  • Advice
  • Treatments
  • Help

Overall, the response to a talkhealth support programme was very positive. Find out more about our FREE mypsoriasis support programme and check out our talkpsoriasis forum, which is always open to give you the opportunity to discuss and share your personal experiences and support others who are living with the very real physical and emotional issues surrounding psoriasis, and psoriatic arthritis.

If you're interested in a detailed analysis of the results for these surveys please contact us.