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Torie’s story - Seize Control

Torie, 33, was diagnosed with left temporal lobe epilepsy at the age of 10. Her frequent seizures had a real impact on her quality of life... Read more about Torie's story and the work she is doing supporting Epilepsy Action’s new Seize Control Campaign...

Torie, UK

What on earth is wrong with me?

I had had joint problems for many years, tendon problems and more recently, eye dryness, blurred vision, dry nose, dry ears, periods of extreme fatigue, and even more recently, very dry skin and genitals. Of course, I had been to see my GP and various specialists over time, but usually just with one or two of these symptoms. IBS and reflux were also on the agenda. The doctors were always kind, considerate and sympathetic, but I always felt like a heart-sink patient and began to become extremely anxious about seeking advice.

I had been told I was depressed, and possibly, I was – not surprising really, as I was struggling with getting through each day. And I began to feel my illness was ‘all in the mind’. I also developed some lung problems in that time – shown on a CT as bronchiectasis, and then asthma. Not surprising, I also acquired the label of ‘anxious patient’. 

To read more about Kathy's story and to find out her diagnosis click here

Kathy Bairstow, UK