I hope over the last two years that I’ve shown you some of the wonderful things that having a child with additional needs brings.
We’ve had our fair share of heart ache dealing with Ella’s ‘arch enemies’ (feeding issues and heart surgery) and it’s only recently that I’ve felt able to box that period of our lives up, put the lid on tight and walk away. I’ll always worry that one day we might have to re-open that box – I’m a mum, nothing will change that. But, for now it can just remain in the far reaches of my mind and gather dust. In hindsight, we’ve been very lucky. An amazing ‘supporting cast’ of nurses, doctors, surgeons, speech therapists, physio’s, nursery staff, play specialists, dietitians, friends and family have helped our little super hero win many a battle along the way.
So, when thinking of super heroes, I couldn’t just mention Ella. Our community is full of them – amazing children, parents and families who have had so much to contend with. They are truly inspirational and have taught me the true meaning of love, patience, compassion and hope. Here are some of my superheroes from their own perspectives…
Superheroes have superpowers right? Well that means our daughter is a superhero too. Florence was born 20th November 2010 and since that day our lives have changed in ways we could never have imagined. Superheroes change into their costumes and save the world, and then they return to their normal lives. Florence arrived with her pants on the outside and has transformed us and we never want her to change. She has fought through four lifesaving surgeries with her oesophagus, heart, liver and peg insertion and countless hiccups but she never wavers and always comes back stronger. Florence has downs syndrome, meaning that she has to work harder than her peers to achieve each milestone, but work she does! Every achievement, every breakthrough, and every hurdle she overcomes like learning how to walk whilst carrying her milk machine in a back pack, leaves us in awe. Everybody has a potential superhero inside of them but when you have learning disabilities those superpowers shine through and we couldn’t be prouder of our little superhero xx
If you are lucky enough to know someone with special needs or a disability, you too know a superhero xx