This coming Thursday see’s the second anniversary of Rosie’s life saving open heart surgery at Alder Hey Children’s Hospital. It’s always hard emotionally thinking back to that time. Equally it’s vital that I don’t allow the experience to become nothing more than a distant memory – such was the importance of the operation, without which we wouldn’t be able to celebrate all her amazing achievements. Last year, on the first anniversary we received a lovely card from our friends Amy, Ian & Ella which simply said, ‘Happy Heart Day’ – I’ve always loved that and shall remember the day with this phrase each year.
You can read my account of the whole experience here: Rosie’s surgery
So back to ‘today’s’ Budlington…
It’s usually the case that Rosie will achieve something new, I’ll excitedly write a post about it then she’ll not do it again for months. However, on this occasion I’m really pleased to say that since my last post, Rosie is still going strong learning to stand up and strengthen her legs. I’m very proud of her efforts which in turn are pushing my fears of her never walking further away each day. There is such a long way to go yet but here we are a couple of weeks on and the novelty is yet to wear off!
She’s still standing…yeah yeah yeah!
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| From here… |
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| …to here in just under two years! Our little hero. |
The Future's Rosie
I'm Tom, a thirty something father to three beautiful children and husband to my soulmate Karen. I started this blog as a means to talk about stuff, get things out in the open, a bit like an online therapy I guess and to celebrate the progress of my beautiful daughter Rosie who was born in March 2011 with Down's Syndrome (DS) and a Complete Atrioventricular Septal Defect (AVSD). Maybe the experiences shared on here will help others too, hopefully help illustrate the bright futures our children with DS will have if we can break down common misconceptions. When I first found out Rosie would be born with DS I found reading literature with open and honest feelings on the subject, extremely helpful. This is not intended to be a written masterpiece and I can promise you it won’t be. I don’t pretend to have a large vocabulary and to be honest the further behind me my school days become the more my grammar has deteriorated!... however, you will find what is written on these pages comes from the heart.
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