Rachel Jurys posts

Rachel Jury

About Rachel Jury

My name is Rachel Jury and I have a rare illness called Pure Autonomic Failure. My bladder and bowel have failed so I permanently have an ileostomy and a urostomy. I also blog over at http://rocking2stomas.co.uk/ about my journey and what it is like living with 2 stomas and how to make the most out of every day!

Rachel Jury

28 Feb

Rare Disease Day 2018

Rare Disease Day

Today is the 28th February and a very special day…today is Rare Disease Day! Rare Disease Day is help on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for …

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Rachel Jury

16 Jan

Urostomy bag Change

Recently there has been a lot of media coverage of brave ostomates baring all in magazines, Tv and breaking stoma stigmas. More and more articles are being featured of men and women embracing their stoma bags and talking openly about …

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Rachel Jury

7 Dec

Let’s talk about Stomas!!

Over the last few years, something amazing has happened… Brave ostomates (people with an ostomy bag) have been proudly baring all with their stoma bags on show in the media and the general public. As a community, over the last …

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