The Cardiomyopathy Association is a charity that provides information and support to families affected by cardiomyopathy.
The heart muscle disease, which affects people of all ages including babies, is usually inherited. It is thought to affect around 200,000 people in the UK.
The charity provides help through its team of cardiomyopathy support nurses, information days around the country, local support groups and a network of affected volunteers who provide support by telephone and email.
Its publications include separate patient booklets on each of the main types of cardiomyopathy – dilated, hypertrophic and arrhythmogenic right ventricular cardiomyopathy – and a booklet on cardiomyopathy in children and young people. It also publishes a quarterly magazine with medical articles, stories on developments in care and latest research, and personal experiences.
The charity supports the medical profession through annual medical conferences, which promote best practice is diagnosing and treating the condition.
The charity campaigns for improved care and for more heart checks and genetic testing for affected families to find those at risk and save lives.
For more information about cardiomyopathy, visit www.cardiomyopathy.org or call the Cardiomyopathy Association Helpline on 0800 0181 024.
Registered Charity no 803262