Search found 7 matches

Search found 7 matches
by cags2015
Fri Aug 16, 2013 1:36 am
Forum: paediatric medical
Topic: re immunisations
Replies: 5
Views: 4924

Re: re immunisations

Dr Charles Shepherd, also contributing to this online clinic, has a special interest in vaccine induced ME and I once heard him speak at a meeting to say that vaccinations should be approached with caution by people with ME, but that each case should be considered on it's merits and the risks/benefi...
by cags2015
Thu Aug 15, 2013 7:44 pm
Forum: paediatric medical
Topic: Air Hunger
Replies: 10
Views: 8896

Re: Air Hunger

goblinff, POTS is Postural Orthostatic Tachycardia Syndrome and is usually diagnosed if your standing heart rate increases by more than 30 beats per min from a resting (lying down) position. It signifies a problem with the autonomic system and can explain dizziness, nausea, fatigue, gastro problems ...
by cags2015
Thu Aug 15, 2013 7:14 pm
Forum: adult medical
Topic: ME vs. MS
Replies: 7
Views: 3595

Re: ME vs. MS

An recent interesting research paper found that in newly diagnosed MS patients presenting initially with fatigue, 29% had been previously been given a diagnosis of ME/CFS. RESULTS: Of the 16,976 patients with MS in the overall population, 5305 (31.3%) were newly diagnosed with MS and had three years...
by cags2015
Thu Aug 15, 2013 6:56 pm
Forum: paediatric medical
Topic: Air Hunger
Replies: 10
Views: 8896

Re: Air Hunger

My daughter also suffers from this and usually has some chest pain at the same time and a very high heart rate. It nearly always helps if she lies flat and in fact during one visit to A&E with chest pains and breathing problems, she was left for so long in a cubicle, lying down, that by the time...
by cags2015
Thu Aug 15, 2013 6:42 pm
Forum: paediatric medical
Topic: POTS and EDS
Replies: 3
Views: 3580

Re: POTS and EDS

Dr Grayson, perhaps you could clear up a source of great of frustration for me. My daughter (aged 15), has a diagnosis of ME/CFS, which was confirmed at the ME/CFS clinic she attends and she has also had a subsequent diagnosis of POTS after a tilt-table test. The assessment of ME/CFS at the ME clini...
by cags2015
Thu Aug 15, 2013 6:28 pm
Forum: paediatric medical
Topic: Chronic Fatigue Syndrome
Replies: 5
Views: 5097

Re: Chronic Fatigue Syndrome

The majority of the better respected ME charities and international patient groups estimate the prevalence of ME at around 0.1%-0.5%. Jane Colby of the Tymes Trust was involved in the largest research project in childhood ME in UK schools (Dowsett/Colby1997) - the study suggested 'prevalence in this...
by cags2015
Thu Aug 15, 2013 5:31 pm
Forum: physical activity & exercise
Topic: Harmful Excercise
Replies: 14
Views: 11315

Re: Harmful Excercise

[quote="Jessica Bavinton"] "Two things should help reassure you: 1) Nothing gets recommended by NICE unless it is both effective and safe 2) The PACE research trial, which explored GET (and other treatments) in great depth, also found GET to be effective and safe. Nothing gets publish...
Search found 7 matches