Thank you Caroline. This never starts with anxiety but after a few hours my daughter becomes anxious which obviously doesn't help. I need strategies to help before we get to this stage. What are 'simple breathing exercises'? My daughter does have a POTS diagnosis and takes salt and water but I under...

It seems that lots of people diagnosed with ME/CFS have POTS and EDS. My daughter has recently been diagnosed with POTS although our GP was quite dismissive and had never heard of it. I think she needs a referral to be assessed for EDS but the GPs attitude is putting me off. When will GPs and other ...

Hi, my daughter (diagnosed with CFS Dec 2010) has been making a slow but sure recovery over the last few months. She is currently having a lot of trouble taking deep breaths. This can be quite distressing and I haven't really found a solution to address the problem when it happens. Does anyone have ...