Search found 36 matches

Search found 36 matches
by Bluebottle
Tue Aug 20, 2013 3:22 pm
Forum: research & funding
Topic: Proof that GET increases Activity Levels?
Replies: 7
Views: 8223

Re: Proof that GET increases Activity Levels?

When will the deterioration rates from the PACE trial be published please?
by Bluebottle
Tue Aug 20, 2013 3:16 pm
Forum: research & funding
Topic: what safety measures are in place for pwME recieving GET?
Replies: 2
Views: 3616

Re: what safety measures are in place for pwME recieving GET

As one of the many permanently harmed by GET I would like the answer to this too please.
by Bluebottle
Tue Aug 20, 2013 3:12 pm
Forum: adult medical
Topic: FIFTEEN M.E./CFS Subgroups/Types ?
Replies: 5
Views: 5296

Re: FIFTEEN M.E./CFS Subgroups/Types ?

It is interesting that Dr Jonathan Kerr identified subgroups in myalgic encephalomyelitis some years ago. The MRC apparently refused him further funding for his research, preferring instead to fund psychiatrists' research into behaviour management of fatigue.
by Bluebottle
Tue Aug 20, 2013 3:08 pm
Forum: adult medical
Topic: Children on the autistic spectrum
Replies: 3
Views: 3435

Re: Children on the autistic spectrum

Thank you Chris, but my question was about us causing autism in our children by unwittingly passing the persistent pathogens that cause M.E. to them in via the placenta.
by Bluebottle
Tue Aug 20, 2013 3:04 pm
Forum: adult medical
Topic: Contaminated Polio Vaccines.
Replies: 9
Views: 7666

Re: Contaminated Polio Vaccines.

Thank you. it is interesting to note that in the US people with M.E. are being successfully treated with antivirals whilst in the UK we are being offered largely ineffectual behavioural management techniques.
by Bluebottle
Tue Aug 20, 2013 11:49 am
Forum: adult medical
Topic: Contaminated Polio Vaccines.
Replies: 9
Views: 7666

Re: Contaminated Polio Vaccines.

Tests for persistent viruses are not available on the NHS although a number of such viruses have been implicated in myalgic encephalomyelitis. Why is it just assumed that any viruses we have are necessarily dormant, and that therefore all treatment given must be solely lifestyle management?
by Bluebottle
Tue Aug 20, 2013 11:22 am
Forum: fibromyalgia
Topic: fibro and me together
Replies: 3
Views: 3663

Re: fibro and me together

Some effective medical treatment would be nice, instead of constantly being told to change our attitudes and lifestyles. How exactly did these become the primary medical treatments for a neurological illness and a soft tissue disorder? If they actually worked we'd all be long since cured! I would re...
by Bluebottle
Mon Aug 19, 2013 8:28 pm
Forum: adult medical
Topic: Children on the autistic spectrum
Replies: 3
Views: 3435

Children on the autistic spectrum

There appears to be a larger than average number of women with myalgic encephalomyelitis who report having children on the autistic spectrum. Is this being investigated please? Could an as yet unidentified persistent pathogen that causes M.E. be transmitted via the placenta, and be causing the child...
by Bluebottle
Mon Aug 19, 2013 8:08 pm
Forum: adult medical
Topic: Contaminated Polio Vaccines.
Replies: 9
Views: 7666

Re: Contaminated Polio Vaccines.

Thank you. I'd like to know much more about this as I can trace some of my symptoms to just after a polio vaccine in the 1950s.
by Bluebottle
Mon Aug 19, 2013 8:06 pm
Forum: research & funding
Topic: PACE Trial analysis
Replies: 1
Views: 2926

Re: PACE Trial analysis

The deliberate exclusion of the severely affected, a quarter of all sufferers, from the PACE trial must have greatly influenced the outcome.
Search found 36 matches