Dear Saffy623 How frustrating! Really this is outside the scope of my knowledge, and different areas work in different ways, but I would use the NICE guidelines to show that this is an evidence-based treatment for your condition, and that travelling is likely to make you feel worse. This link may al...

There were a number of different objective measures used in the PACE trial - including a waking test, amongst others.... as well as subjective measures....

Clinical experience also very much supports that conclusion as well: someone I'm working with is just achieved their 5K run after starting their programme at a 5min walk... many people are currently returning to work, another still is walking her children to school for the first time in 2 years....I...

This may at least in part answer your question, posted by the principal investigators of the PACE trial: "We found that both CBT and GET were more effective than both SMC alone and APT in improving fatigue and physical functioning, both reported by the patients themselves. About six out of ten ...

Thank you all for your thankyous! It makes a real difference to be acknowledged. And in return, I acknowledge all of you: you have the courage and determination to find answers, and to do all you can to understand your health and how to move forwards. You keep going despite such difficult circumstan...

The British Association for CFS/ME (BACME) lists all of the specialist NHS services via this link - the best thing to do is to find the nearest one, and ask your GP to refer you:

http://www.bacme.info/localservices/

PS the aforementioned 'attached' didn't attach, so the link was provided instead....

Here is part of a letter we sometimes write to employers (and, of course, personalise) which might give you some ideas: Return to Work for CFS/ME Most people with CFS/ME will be covered by the Disability Discrimination Act (DDA). Therefore, a carefully graded return to work is considered as an adjus...

Thank you all for your thankyous! It makes a real difference to be acknowledged. And in return, I acknowledge all of you: you have the courage and determination to find answers, and to do all you can to understand your health and how to move forwards. You keep going despite such difficult circumstan...

Dear sweetybandit Muscle pain can be, as in your case, a significant issue for people with CFS/ME. People tend to find it may have a generally constant impact, but gets worse: 1) When being 'over-active' - ie doing more than the body is entirely happy with 2) When resting too much, or being 'under-a...