I have met Hannah - she came to the last meeting of the Forward ME Group of charities (Chairman: Countess of Mar) at the House of Lords

Forward ME Group information and Minutes of meetings:

http://www.forward-me.org.uk

Interesting new research paper on vitamin D:

http://www.biomedcentral.com/1741-7015/11/171

Yes, Jonathan carried out some interesting research into gene expression in ME/CFS and identified some sub-groups. Similar research into gene expression was carried out by Professor John Gow in Glasgow with a grant from the MEA If you are referring to MRC funding for PACE this was agreed years befor...

Margaret As a patient support charity The MEA is doing our best to educate GPs about ME/CFS Over 3,000 copies of the new MEA purple booklet have been sent out to GPs since publication in May and the feedback from doctors is very positive - see comments below from our Facebook page today I have met w...

Launch of the UK ME/CFS Research Collaborative at the Wellcome Collection in London:

http://www.meassociation.org.uk/?p=15184

Stephen is putting into scientific language what many of us already believe: That the ME/CFS umbrella contains people with a wide range of clinical presentations and disease pathways - rather like saying everyone with chronic joint pain could come under a 'chronic joint pain syndrome' diagnosis. And...

One example from the private sector:

http://www.burrswood.org.uk/news_events ... _programme

There are a few centres in the private sector that offer this type of approach, or respite care

The MEA has a list if you need one

MEA website: www.meassociation.org.uk

From MEA purple booklet: Differential Diagnosis of ME/CFS: DIFFERENTIAL DIAGNOSIS Although extensive and elaborate investigations are seldom required, other causes of chronic fatigue must be considered where the history is atypical. Also remember that ‘new’ symptoms should not automatically be ascr...

George Yes, misdiagnosis is a significant issue and it's not helped by having such a wide range of clinical presentations and disease pathways coming under the umbrella of ME/CFS As I keep saying it's rather like stating that everyone with joint pain - rheumatoid arthritis, osteoarthritis, infective...