Search found 8 matches

Search found 8 matches
by Janancee
Mon Aug 19, 2013 5:33 pm
Forum: research & funding
Topic: PACE Trial analysis
Replies: 1
Views: 2900

PACE Trial analysis

Re: "The PACE trial principal investigators answer questions" (The above post has now been locked so I am unable to post this response on the same thread). RESPONSE TO ABOVE The above statement by the PACE Trial researchers has not provided the information which many people posting on this...
by Janancee
Thu Aug 15, 2013 3:05 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20567

Re: GET - useful or risky?

Dear "onlyme2013" It must be an absolute nightmare for you, wading through all the conflicting information to try to find how best you can help your child. Personally, as someone who has had ME for several years, and spends a great deal of time researching information about the illness, I ...
by Janancee
Thu Aug 15, 2013 2:29 pm
Forum: physical activity & exercise
Topic: Harmful Excercise
Replies: 14
Views: 10859

Re: Harmful Excercise

[quote="Jessica Bavinton"] "However, it’s also right that people would say ‘Graded Exercise Therapy made me better’ as this is now strongly supported by research.... ....The PACE research trial, which explored GET (and other treatments) in great depth, also found GET to be effective a...
by Janancee
Thu Aug 15, 2013 2:15 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20567

Re: GET - useful or risky?

Dear “UKNW2013” I am glad to hear about your friend’s progress. The difficulty here however is that it is impossible to say whether he would have still gradually improved to this extent without undergoing GET. This is the issue that the PACE Trial was trying to resolve. What the trial showed was tha...
by Janancee
Wed Aug 14, 2013 4:17 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20567

Re: GET - useful or risky?

Dear laelowse Many people who have taken part in structured “Graded Exercise Therapy” (GET) supervised by a “suitably qualified” therapist according to the NICE guidelines, have reported that they have been made permanently worse. Because of the controversy surrounding this approach a large clinical...
by Janancee
Wed Aug 14, 2013 3:07 pm
Forum: adult medical
Topic: Transmission
Replies: 5
Views: 1648

Re: Transmission

"Thinker" While I acknowledge the information provided by Dr. Shepherd I find it difficult to reconcile this with my own personal experience ( see post "Is M.E. Infectious"). Like you, the common factor between myself and the four others who became ill was that there was close ph...
by Janancee
Wed Aug 14, 2013 11:48 am
Forum: adult medical
Topic: Would you recommend trying Hydroxychloroquine?
Replies: 3
Views: 1017

Re: Would you recommend trying Hydroxychloroquine?

Hi Sarah, was somewhat surprised to see chloroquine mentioned in relation to M.E. I have been ill with M.E. for 14 years, but only recently diagnosed. For many years my diagnosis was "possible M.S.". Several years ago before my condition deteriorated to its present level, I took an over th...
by Janancee
Wed Aug 14, 2013 10:58 am
Forum: adult medical
Topic: Is ME infectious?
Replies: 7
Views: 4448

Is ME infectious?

Question for Dr Alastair Miller Fourteen years ago I became ill. Within 12 months four close friend also became ill with similar symptoms. We were all individually referred to NHS consultant neurologists. We each now have/had ( one friend sadly died last year after being bed bound for over 7 years) ...
Search found 8 matches