Search found 8 matches

Search found 8 matches
by Catrina26
Fri Aug 16, 2013 11:24 pm
Forum: paediatric medical
Topic: CFS/ME and Auto Immune
Replies: 9
Views: 7587

Re: CFS/ME and Auto Immune

Thank you for your reply Dr Grayson. We live in Glasgow and have been under Yorkhill Hospital for the last four years. Her Rheumatologist does have an interest in CFS/ME and we have been lucky to be under a wonderful consultant who has helped as best she can, but as she has admitted specialist help ...
by Catrina26
Fri Aug 16, 2013 10:28 pm
Forum: adult medical
Topic: Are there any ME/CFS Specialists or clinic's in Scotland?
Replies: 4
Views: 4657

Re: Are there any ME/CFS Specialists or clinic's in Scotland

Hi my niece and two friends with CFS/me have been referred to the Glasgow Homeopathic (sp) Hospital. They have been told it is where anyone with CFS/me is referred in the Glasgow area. It used to be Gartnavel Hospital but services were cut and they no longer see anyone and Specialist now works down ...
by Catrina26
Thu Aug 15, 2013 11:34 pm
Forum: paediatric medical
Topic: CFS/ME and Auto Immune
Replies: 9
Views: 7587

Re: CFS/ME and Auto Immune

Unfortunately this is what we have been told previously. That she is "complex" in her conditions. For the first 2 years of her illness we were told various things it "may" be i.e. CFS, Lupus, Arthritis, Post Viral, Glandular Fever. Unfortunately never having a clear specific bloo...
by Catrina26
Thu Aug 15, 2013 4:24 pm
Forum: paediatric medical
Topic: CFS/ME and Auto Immune
Replies: 9
Views: 7587

Re: CFS/ME and Auto Immune

Dr Grayson, she is under Rheumatology, has also been seen by Immunology. The year before her CFS her C4 complement level was 15 and C3 was 1.01. The year she became ill (after a viral illness, swine flu vaccination and then admittance to hospital with mesenteric adenitis all within 4 weeks of each o...
by Catrina26
Wed Aug 14, 2013 9:21 pm
Forum: paediatric medical
Topic: Activity management
Replies: 15
Views: 12122

Re: Activity management

We found that the relapses continued in my daughter's case when physio was pushed on her. It was a horrible and stressful time at a time when she was at her worst. The worst I can remember is having an appointment with physio then seeing her Rheumatologist. She was (is still) using a wheelchair her ...
by Catrina26
Wed Aug 14, 2013 9:11 pm
Forum: paediatric medical
Topic: CFS/ME and Auto Immune
Replies: 9
Views: 7587

Re: CFS/ME and Auto Immune

Thank you. I was concerned because Lupus had been mentioned, she suffers from rash from sunlight, swelling to knee, face etc and some other factors that didn't "fit" into CFS. We were told it can take up to 10 years to manifest itself and for "now" for ANA is negative. She suffer...
by Catrina26
Wed Aug 14, 2013 1:08 pm
Forum: paediatric medical
Topic: Activity management
Replies: 15
Views: 12122

Re: Activity management

I just wanted to let you know we have had a similar experience. My daughter was referred to physio shortly after diagnosing CFS and the physio we saw pushed her really hard to the point where she was relapsing for 2/3 weeks after each session. I felt she had little knowledge of CFS and how it affect...
by Catrina26
Wed Aug 14, 2013 12:00 pm
Forum: paediatric medical
Topic: CFS/ME and Auto Immune
Replies: 9
Views: 7587

CFS/ME and Auto Immune

Hi my daughter, 16 was diagnosed with CFS 4 years ago. She has made only a slight improvement in 4 years. She is also Type 1 Diabetic has Idiopathic Angioedema, Severe Chronic Gastritis. She wasn't diagnosed for almost a year as they were excluding other problems ie. her C100 and she also presented ...
Search found 8 matches