Search found 18 matches

Search found 18 matches
by Laurellen
Wed Oct 16, 2013 2:44 pm
Forum: general Mental Health questions
Topic: Tollerance for misleading 'positive' claims about treatments
Replies: 1
Views: 2317

Re: Tollerance for misleading 'positive' claims about treatm

Some of the above images seem to have been formatted in a way which cuts of their edges. One can right click, and choose to 'view image' to see them properly. Sorry.
by Laurellen
Wed Oct 16, 2013 2:42 pm
Forum: general Mental Health questions
Topic: Tollerance for misleading 'positive' claims about treatments
Replies: 1
Views: 2317

Tollerance for misleading 'positive' claims about treatments

There seems to be a culture within mental health care of tolerating false, misleading and dishonest claims about treatment efficacy, often justified with vague references to 'hope', encouragement, etc. When those involved in alternative medicine (homeopathy, etc) behave in this way, they are rightly...
by Laurellen
Tue Aug 20, 2013 4:19 pm
Forum: research & funding
Topic: To the moderators of this forum. Misleading information.
Replies: 2
Views: 5887

Re: To the moderators of this forum. Misleading information.

Also, with regards to the most seriously ill patients, we should mention the FINE trial. Much attention has been devoted to PACE, but the FAQ on the PACE website reports: Is PACE the only major trial for CFS/ME being carried out in the UK? The MRC announced funding in May 2003 for two trials looking...
by Laurellen
Tue Aug 20, 2013 4:13 pm
Forum: research & funding
Topic: To the moderators of this forum. Misleading information.
Replies: 2
Views: 5887

Re: To the moderators of this forum. Misleading information.

Rather than correcting or deleting the claims of others, I think that it would be better for moderators to leave threads open, so that others could explain why some of the claims being made are misleading. What is really dangerous, is for the moderators to close topics once misleading information ha...
by Laurellen
Tue Aug 20, 2013 2:37 pm
Forum: adult medical
Topic: Thank you!
Replies: 18
Views: 11070

Re: Thank you!

Thanks a lot to all those who have worked so hard to engage honestly with the concerns of patients.
by Laurellen
Tue Aug 20, 2013 12:50 pm
Forum: research & funding
Topic: Will Bavinton respond to the specific points about spin?
Replies: 0
Views: 2058

Will Bavinton respond to the specific points about spin?

It seems that we have fallen into a strange situation where, when Bevinton mentions or quotes from research this is seen as acceptable. When patients point out how misleading some of Bevinton's claims are, this is treated as a 'research discussion' which should be deleted or locked. There is a serio...
by Laurellen
Mon Aug 19, 2013 3:47 pm
Forum: physical activity & exercise
Topic: Harmful Exercise 2 - Attention Dr Miller
Replies: 2
Views: 2812

Re: Harmful Exercise 2 - Attention Dr Miller

Unfortunately the PACE trial principal investigators avoided answering most of the specific points that had been raised in the now locked thread. It would be interesting to know what Dr Miller thought could be done to ensure that patients had access to more useful data from the PACE trial than that ...
by Laurellen
Mon Aug 19, 2013 3:35 pm
Forum: research & funding
Topic: Outcome Measures for GET
Replies: 8
Views: 8480

Re: Outcome Measures for GET

Whose question did they answer? We can now see that the PACE researchers have not challenged the facts being reported by critics about the way in which the results from PACE were misleadingly presented, but are just not concerned by them. It seems as if they've completely avoided the specific points...
by Laurellen
Fri Aug 16, 2013 9:24 pm
Forum: research & funding
Topic: For Jessica Bavinton
Replies: 6
Views: 8084

For Jessica Bavinton

I had thanked TalkHealth for providing a place where patients could discuss the available evidence for treatments they may wish to pursue with those who are providing them. However, as my post was deleted, and the thread locked, I would instead be interested in having them explain why they seek to p...
by Laurellen
Fri Aug 16, 2013 3:28 pm
Forum: adult medical
Topic: ME/CFS Charities
Replies: 9
Views: 2892

Re: ME/CFS Charities

Considering the amount of controversy and uncertainty, it is not that surprising that there are lot of groups with differing priorities. I think that The ME Association is by far the bast of the two main charities (although I do not always agree with what they do). It gives members a vote at Annual ...
Search found 18 matches