Search found 6 matches

Search found 6 matches
by CFS.ME Mum
Sat Aug 17, 2013 1:41 pm
Forum: adult medical
Topic: Harmful approach to CFS
Replies: 2
Views: 1319

Harmful approach to CFS

Dear Dr Shepherd in a post entitled "GP advice" you mentioned the advice given was potentially harmful. We were given very similar advice to the person who posted that question regarding our son. He was 6 when he had glandular fever (confirmed by a blood test), then he had 6 months of requ...
by CFS.ME Mum
Fri Aug 16, 2013 9:48 pm
Forum: paediatric medical
Topic: What is active relaxation?
Replies: 3
Views: 3642

What is active relaxation?

Can I please ask another question? Prior to seeing a CFS Paediatric Consultant we had a probable diagnosis of CFS so had started to do research. We came across the literature for Dr Crawley's clinic in Bath. On the Baht website they suggested 5 mins per hour as a rest break. We asked the CFS team we...
by CFS.ME Mum
Fri Aug 16, 2013 9:39 pm
Forum: activity management in children
Topic: Cognitive impairment
Replies: 8
Views: 5883

Re: Cognitive impairment

Dear All, It is interesting to hear that cognitive problems are sometimes the last to resolve. I have been in contact with both AYME and TYMES Trust. I found that with TYMES Trust their literature is very helpful and the best we have found so far for CFS/ME and education. And for AYME I have found t...
by CFS.ME Mum
Fri Aug 16, 2013 12:24 am
Forum: adult medical
Topic: Hypnotherapy
Replies: 2
Views: 2686

Hypnotherapy

Is hypnotherapy possible on the NHS? Could it help with reduction of pain levels and to withdraw from pain medication? I am currently taking Buprenorphine sublingual tablets - 3 x 0.2mg per day - and would love to come off them. I have been told by a neurologist and immunologist in the past that I p...
by CFS.ME Mum
Thu Aug 15, 2013 11:11 pm
Forum: activity management in children
Topic: Cognitive impairment
Replies: 8
Views: 5883

Cognitive impairment

My 9 year old developed CFS/ME following glandular fever when he was 6. We have established a good sleep routine and many of his symptoms (pain, sore throat, inability to walk, etc) have all improved and are only present when he has over exertion or has another illness present. However his ability t...
by CFS.ME Mum
Wed Aug 14, 2013 4:43 pm
Forum: adult medical
Topic: breathing with ME
Replies: 6
Views: 2698

Re: breathing with ME

A book called "Hyperventilation Syndrome - Breathing Pattern Disorders" by Dinah Bradley might be helpful. It explains how we can subconsciously become shallow breathers where we are breathing more from the chest than the stomach.
Search found 6 matches