Search found 10 matches

Search found 10 matches
by ithought
Sun Aug 18, 2013 1:34 am
Forum: paediatric medical
Topic: How to stay empowered when your sick child becomes 16?
Replies: 1
Views: 2130

Re: How to stay empowered when your sick child becomes 16?

Put all the requests In writing to practice managers or clinics I know it's exhausting my husband faces the same battle even my IMCA was asked for evidence that se was speaking on my behalf recently!!!
by ithought
Sat Aug 17, 2013 10:45 pm
Forum: adult medical
Topic: Body Temperature regulation
Replies: 1
Views: 979

Body Temperature regulation

I have massive and sudden problems maintaining my body thermostat. Even when i am asleep i will wake up sweating and will grab some cool water to cool down What suggestions can the professionals make? The fluctuations do render me unconscious. This has been a problem for over 30 years.
by ithought
Fri Aug 16, 2013 5:43 am
Forum: adult medical
Topic: Why is CFS/ME considered a psychiatric condition?
Replies: 7
Views: 3104

Re: Why is CFS/ME considered a psychiatric condition?

I don't think you can speak for all 'NHS employers when you say you don't treat it as a paychiatric condition I have been told often enough in the last three years that it is... Sadly education about ME is still very out of date in some areas of the UK...
by ithought
Fri Aug 16, 2013 5:17 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20650

Re: GET - useful or risky?

I replied to this last night but it appears the Internet ate my reply.

What I don't understand is why we believe that it's ok to prescribe a treatment programme that's proven to harm so many because of the possible improvements it has for some. It makes a mockery of the medical oath of 'do no harm'
by ithought
Thu Aug 15, 2013 7:17 am
Forum: adult medical
Topic: Continence
Replies: 2
Views: 1242

Re: Continence

Thank you for the timely response however it appears that my local health board doesn't see ME as any more than an illness to be laughed at and it's almost impossible to get any blood tests or research into symptoms. The district nurses say its a mental health problem and as such wont support althou...
by ithought
Thu Aug 15, 2013 1:10 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20650

Re: GET - useful or risky?

When the effects for some people of GET can be so harmful why is it ok to sacrifice there health for the small gains gained by the few it can help. It appears that the 'dr do no harm' doesn't apply to GET.
by ithought
Thu Aug 15, 2013 12:55 am
Forum: adult medical
Topic: Extreme Mental Exhaustion
Replies: 1
Views: 1031

Extreme Mental Exhaustion

I have had ME since 1981 and recently following an extended hospital stay which contributed to a serious relapse I was diagnosed as having 'extreme mental exhaustion' I agreed to see the psych teams both psychiatric and psychological as per the hospitals wishes but both teams said its a result of th...
by ithought
Wed Aug 14, 2013 10:53 pm
Forum: adult medical
Topic: Why the forum name?
Replies: 3
Views: 1210

Re: Why the forum name?

So are you saying that the severe and disabling symptoms of ME, the bowel distortion, the environmental sensitivities, the often needing peg feeding are the same as for some one with fibro. They may appear the same In the early days or at the not very severe end but anyone who has witnesses the long...
by ithought
Wed Aug 14, 2013 9:26 pm
Forum: adult medical
Topic: Continence
Replies: 2
Views: 1242

Continence

It is well documented in Very Severe ME that maintaining continence can become a problem. Why then is so little done to support people with this very distressing symptom?
by ithought
Wed Aug 14, 2013 9:15 pm
Forum: adult medical
Topic: Why the forum name?
Replies: 3
Views: 1210

Why the forum name?

I am intrigued as to why its seen as appropriate to lump together a neurological condition with a rheumatic condition when discussing supporting treatments. ME and Fibromyalgia are very different illnesses and as such need different medical interventions.
Search found 10 matches