My child has been ill with CFS/ME for 5 years. Now she is 16 and suddenly she is expected to book appointments or change them herself, despite being bed ridden, noise sensitive (so unable to use the phone) and, due to cognitive impairment, unable to read. When I asked for permission to be noted on h...

TalkHealth - I wonder why you have asked bluebottle not to answer?

Why is that opinion any less valuable than the Dr?
Surely experience and sharing information is the point?

The advice given was to get advice - that is good advice.

I would send the school and GP a copy of the NICE Guidelines on CFS/ME. That clearly states the GET and CBT are to help manage the condition for those not severely affected. It is not a cure and it is to be suitably planned to the individual patient needs. Also there is a document that you can find ...