Search found 6 matches

Search found 6 matches
by biophile.pr
Tue Aug 20, 2013 4:36 am
Forum: research & funding
Topic: In response to the PACE trial principal investigators
Replies: 2
Views: 4175

Re: In response to the PACE trial principal investigators

Re: "no longer meeting trial entry criteria". It is important to point out that this means failing to meet any single criterion for trial entry criteria, not that participants did not meet any of these criteria at all. Examples include: • A participant could have scored 65 points in physi...
by biophile.pr
Tue Aug 20, 2013 3:33 am
Forum: research & funding
Topic: Which adverse effects are significant to patients in PACE?
Replies: 0
Views: 2868

Which adverse effects are significant to patients in PACE?

White et al have repeatedly re-assured us that GET is safe. However, patients and researchers may have different ideas about what constitutes a significant adverse effect, and this difference may help in part to explain the noted "discrepancy" between patient surveys and the PACE Trial. PA...
by biophile.pr
Tue Aug 20, 2013 2:13 am
Forum: research & funding
Topic: Questions for the PACE trial PIs
Replies: 1
Views: 3713

Re: Questions for the PACE trial PIs

Very interesting, adrian01. Thankyou for bringing this to attention. I would also like it answered. As the actual dataset shows that only 8% of the most relevant population sample are excluded when using ≥ 85/100 points as the threshold for normal, not "approximately half" as implied by Wh...
by biophile.pr
Sun Aug 18, 2013 9:17 am
Forum: research & funding
Topic: Does GET actually improve activity levels?
Replies: 3
Views: 5784

Re: Does GET actually improve activity levels?

I and many other patients have undergone numerous failed attempts at graded increases in activity. We have been sold a therapy which is framed as successfully rehabilitating many patients back to normal health and function. Numerous anecdotes of null or adverse effects have promoted many individuals...
by biophile.pr
Sun Aug 18, 2013 2:44 am
Forum: research & funding
Topic: Does GET actually improve activity levels?
Replies: 3
Views: 5784

Re: Does GET actually improve activity levels?

Good question, Valentijn. I previously posted a similar themed question(s) here at the "physical activity & exercise" section but without an answer it was soon closed and relegated to the "research & funding" section where threads are generally not answered (according to ...
by biophile.pr
Fri Aug 16, 2013 10:20 am
Forum: research & funding
Topic: Where is the evidence that CBT/GET increase activity levels?
Replies: 1
Views: 3883

Where is the evidence that CBT/GET increase activity levels?

ME/CFS leads to significant impairments and reductions in a range of activities. [1][2][3] The underlying rationale of CBT and GET for CFS hypothesizes that these reductions are predominately maintained by cognitive and behavioural factors. Therapy challenges the supposedly maladaptive belief that a...
Search found 6 matches