Search found 25 matches

Search found 25 matches
by Valentijn
Tue Aug 20, 2013 4:41 pm
Forum: physical activity & exercise
Topic: severe lactic acid
Replies: 9
Views: 14909

Re: severe lactic acid

The deconditioning theory for causing muscle pain is indeed quite odd. My leg muscle pain was by far the worst at the very start of my illness, when I was walking very quickly to catch buses and trains after classes. I would get a horrible burn in my calves that was really unbearable - I'd have to s...
by Valentijn
Tue Aug 20, 2013 2:17 pm
Forum: research & funding
Topic: Proof that GET increases Activity Levels?
Replies: 7
Views: 8214

Re: Proof that GET increases Activity Levels?

There were a number of different objective measures used in the PACE trial - including a waking test, amongst others.... as well as subjective measures.... But from what I understand, none of those measures were used to determine "recovery" (which was defined to be nowhere near actual rec...
by Valentijn
Tue Aug 20, 2013 2:11 pm
Forum: research & funding
Topic: Proof that GET increases Activity Levels?
Replies: 7
Views: 8214

Re: Proof that GET increases Activity Levels?

We found that both CBT and GET were more effective than both SMC alone and APT in improving fatigue and physical functioning, both reported by the patients themselves. But never objectively in any studies, only on questionnaires? Is there a reason to trust those questionnaire responses more than th...
by Valentijn
Tue Aug 20, 2013 1:41 pm
Forum: research & funding
Topic: Proof that GET increases Activity Levels?
Replies: 7
Views: 8214

Proof that GET increases Activity Levels?

Thank you for answering my question about whether GET increases energy levels, Jessica. You said in another thread, which was locked before I could respond, that: The incremental approach, which includes GET and CBT, have both been found to be effective in increasing activity levels. Is there any so...
by Valentijn
Tue Aug 20, 2013 1:34 pm
Forum: physical activity & exercise
Topic: Elevated heart rate days after exertion
Replies: 2
Views: 3045

Re: Elevated heart rate days after exertion

I don't have access to an ME doctor. I went to a CBT/GET clinic for about a year (I live elsewhere in Europe, not the UK), and they only treat patients for a year there, then send us back to our GPs for management. My GP is supportive, but has no idea what is going on either. Lungs were checked out ...
by Valentijn
Tue Aug 20, 2013 7:03 am
Forum: adult medical
Topic: Thank you!
Replies: 18
Views: 11102

Re: Thank you!

I agree - thank you so much for doing this for us!
by Valentijn
Mon Aug 19, 2013 7:54 pm
Forum: diet
Topic: Quick, nutritious and low cost
Replies: 9
Views: 8226

Re: Quick, nutritious and low cost

I used to love boiled eggs for easy protein, but I don't tolerate them now. My new easy protein is liverworst, though I have to be careful to get gluten-free, no MSG (E621), etc. But a couple bites is quite filling and helps me avoid the cruddy feeling I get if I go too long with no protein. I also ...
by Valentijn
Mon Aug 19, 2013 3:24 pm
Forum: physical activity & exercise
Topic: Does GET help us become more active?
Replies: 1
Views: 2948

Does GET help us become more active?

I have seen many statements from experts here that GET is supposed to help us. But other sources say that GET doesn't improve physical activity levels, etc, but just improves how fatigued we feel. I have ME, and I don't really feel fatigued, but I am very physically disabled and largely housebound a...
by Valentijn
Sat Aug 17, 2013 4:40 pm
Forum: paediatric medical
Topic: Body 'shut down'
Replies: 7
Views: 7607

Re: Body 'shut down'

Sorry, but I'm still confused. CFS/ME is classified as a neurological illness in the UK, and by WHO, and not as a psychological illness. So why does the answer recommend that the patient is referred to a psychologist, when experiencing seizures? Perhaps that answer would be appropriate for a psychol...
by Valentijn
Sat Aug 17, 2013 3:02 pm
Forum: research & funding
Topic: Does GET actually improve activity levels?
Replies: 3
Views: 4770

Does GET actually improve activity levels?

An expert here is saying that GET results in improvement. But I haven't read any studies showing any improvement at all in physical activity levels in patients undergoing GET. In fact, the studies using actometers (Wiborg, et al) show there is no increase in activity levels, even though patients say...
Search found 25 matches