Search found 5 matches

Search found 5 matches
by miazulME
Sat Aug 17, 2013 1:55 pm
Forum: activity management in children
Topic: GET program in young child
Replies: 12
Views: 11876

Re: GET program in young child

NICE guidance says you can choose to opt out of any element and the rest of your treatment should not suffer. Get the NICE guidance, highlight the section and use as required would be my suggestion. The point made earlier about the need to include mental exertion as well as physical exertion is cruc...
by miazulME
Fri Aug 16, 2013 5:25 pm
Forum: paediatric medical
Topic: Does my child have CFS
Replies: 15
Views: 9142

Re: Does my child have CFS

We run these clinics specifically for patients and people affected by health conditions to talk directly to medical professionals. We do recognise the value of advice from those with personal experiences and have a range of forums (separate to these clinics) where patients can freely talk to one an...
by miazulME
Fri Aug 16, 2013 5:16 pm
Forum: activity management in children
Topic: GET program in young child
Replies: 12
Views: 11876

Re: GET program in young child

My understanding is that the premise of GET is that it addresses deconditioning but as far as I understand it doesn't make any claims re inflammation and infection and from my knowledge of physiology I'm not sure how it could do that. I've done some looking into recommendations for "healthy&quo...
by miazulME
Fri Aug 16, 2013 3:54 pm
Forum: activity management in children
Topic: Cognitive impairment
Replies: 8
Views: 5883

Re: Cognitive impairment

my son had a specific session with his clinical psychologist to help with his cognitive problems who gave him specific strategies to cope with school work and concentration and found it quite useful. might be worth asking if you have any access to clinical psychology
by miazulME
Fri Aug 16, 2013 3:48 pm
Forum: activity management in children
Topic: GET program in young child
Replies: 12
Views: 11876

Re: GET program in young child

It's my understanding that PACE (the main trial used to justify GET in adults) has not been replicated in children. That's what my son's physio told me when I queried it. I'm a physio by trade (but had little knowledge of in ME before my son became ill as I specialised in cardiac) but I hadn't heard...
Search found 5 matches