Search found 6 matches

Search found 6 matches
by reneMEFMS
Sat Aug 17, 2013 5:32 pm
Forum: adult medical
Topic: when does PVFS become ME
Replies: 1
Views: 2714

when does PVFS become ME

I was diagnosed with PVFS after I failed to recover from a viral illness I was off six weeks from work and there was definite ongoing infection as my blood tests showed clear immune abnormalities that confirmed that> I didn't recover and went back to work two soon and was back sick again within a we...
by reneMEFMS
Sat Aug 17, 2013 4:48 pm
Forum: research & funding
Topic: For Jessica Bavinton
Replies: 6
Views: 8157

Re: For Jessica Bavinton

From 14 - 20 August 2013 NHS Choices and talkhealth will team up with ME Association, Action for ME, AYME (Association of Young People with ME), CFS Research Foundation, FibroAction and Fibromyalgia Association UK to present an Online Clinic on CFS/Fibromyalgia/ME he was invited the list is above an...
by reneMEFMS
Sat Aug 17, 2013 4:43 pm
Forum: research & funding
Topic: For Jessica Bavinton
Replies: 6
Views: 8157

Re: For Jessica Bavinton

They even locked down the medical advisor to the ME associations thread on pacing verses GET before any answer came from the panel and I think he was invited to the forum to answer questions
by reneMEFMS
Sat Aug 17, 2013 4:40 pm
Forum: research & funding
Topic: For Jessica Bavinton
Replies: 6
Views: 8157

Re: For Jessica Bavinton

yes it is very kind of them to spend time and effort to do this forum I doubt very much that any of them thought that it would be simple as ME FMS is such a hard to live with hard to treat illess frustrating for those who suffer the familys and friends and the care givers themselves but all we have ...
by reneMEFMS
Sat Aug 17, 2013 11:16 am
Forum: research & funding
Topic: GET or Pacing?
Replies: 4
Views: 6211

Re: GET or Pacing?

Also some Drs who were very closely involved in GET have stated that it is not even remotely curative so how come Dr Alister Miller thinks he can get to 100 percent cure figure :o
by reneMEFMS
Sat Aug 17, 2013 11:11 am
Forum: research & funding
Topic: GET or Pacing?
Replies: 4
Views: 6211

Re: GET or Pacing?

Thank you Dr Shepard Why do those experts who are attached closely to the PACE trial give out their opinion as if they were solid facts and state that all who are diagnosed with ME CFS chronic fatigue syndrome chronic fatigue FMS will all improve with GET as long as it is their GET as was done in th...
Search found 6 matches