Search found 3 matches
- Thu Sep 19, 2013 2:23 am
- Forum: ichthyosis
- Topic: Non-Bullous Ichthyosiform Erythroderma
- Replies: 4
- Views: 5453
Re: Non-Bullous Ichthyosiform Erythroderma
Hi! Given your description, it sounds like you have what is also known as Autosomal Recessive Congenital Ichthyosis, or ARCI. The pulled down eye problem is called ectropion. If you don't keep your eyes hydrated, they can dry out and cause corneal damage, called erosion. This takes a very long time ...
- Wed Sep 18, 2013 9:48 pm
- Forum: ichthyosis
- Topic: X-Linked Ichthyosis
- Replies: 5
- Views: 7100
Re: X-Linked Ichthyosis
It's my understanding that severity may differ from one child to another with the same parents (and therefore the same mutation), but generally what one child has is in the ballpark of what another gets. So it might be a little more severe or a little milder, but not much. No one knows the reasons f...
- Wed Sep 18, 2013 9:42 pm
- Forum: ichthyosis
- Topic: Ichthyosis and Vitamin D Deficiency
- Replies: 7
- Views: 9452
Re: Ichthyosis and Vitamin D Deficiency
It seems to be a common problem. My spouse and kids have ichthyosis en confetti and my spouse developed Mystery Sleeping Sickness a couple years ago. After about 6 months of thyroid tests and sleep studies, they finally figured it out and put her on a megadose of Vitamin D. Problem sorted. Later, I ...