What does it mean, on a day to day basis, that ichthyosis affects the body's ability to metabolise fats? I have never heard that before and am wondering how that would show itself in my son's normal bodily functions. I ask because sometimes it takes a long time for him to go to the bathroom, and he ...

Hello! My son has lamellar ichthyosis, and his feet have been a constant source of struggle for us. Because the skin on his toes is so thick there are really no spaces in between them, and we are constantly battling athletes foot that sometimes is so bad the skin between his toes is raw. We have gon...

Hello! Something I have often worried about is the constant application of the same cream all over my son's body, everyday. I don't really know what it is that I am putting on, and essentially in, to his body and I wondered if there could be any issues later. For example, one of the main creams that...