Search found 6 matches

Search found 6 matches

Search found 6 matches
by juliecragg
Thu Sep 06, 2018 8:51 pm
Forum: Other Skin Conditions
Topic: AP and PLE
Replies: 1
Views: 459

AP and PLE

Hi, any ideas of any suncream factor 50 that doesn’t have water as the main ingredient? Or anything which may help her AP to become a little more toleratable. She was diagnosed at stThomass hospital has had controlled light therapy but told that there is nothing more that they can do to try to help ...
by juliecragg
Fri Feb 24, 2017 3:05 pm
Forum: general
Topic: AP
Replies: 1
Views: 824

AP

Is Aquagenic Puritious a allergy. My daughter has just been diagnosed at StThomass hospital. Are there any new trials or research being done any time soon
by juliecragg
Wed Feb 01, 2017 11:32 am
Forum: BSF general discussion
Topic: Aquagenic Pruritus
Replies: 1
Views: 923

Aquagenic Pruritus

Hi, my daughter has just recieved a diagnoses of AP although i think she has AU too. As parts of her body does come up in a raised red rash after exposure. She is in extreme pain after showering. Is there any type of skin cleaner that doesnt contain water? She uses dry shampoo as it even effects her...
by juliecragg
Wed Jan 18, 2017 11:00 am
Forum: Children's Skin Conditions
Topic: Allergies
Replies: 1
Views: 1570

Allergies

My daughter has been diagnosed with PLE and has an appointment in dermatology tomorrow regarding aquagenic utercaria. Her sensitivity to water is getting worse as time goes on. It started with just her legs when bathing and now it's most of her body, even when she cries because of the pain after a 2...
by juliecragg
Thu Mar 03, 2016 3:28 pm
Forum: general allergy discussions
Topic: My daughters allergy to water
Replies: 3
Views: 3256

Re: My daughters allergy to water

Thank you for those sites. Yes, she was formally diagnosed at Guys hospital, London. She was also diagnosed with PLE and solar sensitivity. They have said the treatment for the aquagenic utacaria is UVA which will activate her PLE and solar issues.
by juliecragg
Wed Dec 16, 2015 2:45 pm
Forum: general allergy discussions
Topic: My daughters allergy to water
Replies: 3
Views: 3256

My daughters allergy to water

Hi, can anyone help? My 16 year old who has been diagnosed with PLE for 10 years has now been told she has aquagenic utercaria, ( allergy to water). She has trouble keeping clean as every type of cleanser or soap has water as its main ingredient. Even the hospital Drs ask how she washes. The answer ...
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