Search found 36 matches
- Wed Aug 14, 2013 4:52 pm
- Forum: adult medical
- Topic: dorsal root ganglionitis
- Replies: 4
- Views: 3694
Re: dorsal root ganglionitis
Thank you for your extensive reply.
Is there a test for this on a living person please?
Is there a test for this on a living person please?
- Wed Aug 14, 2013 4:39 pm
- Forum: physical activity & exercise
- Topic: GET - useful or risky?
- Replies: 40
- Views: 25446
Re: GET - useful or risky?
The PACE trial researchers have also refused to publish the deterioration rates from their trial.
http://www.stonebird.co.uk/pace/index.html
http://www.stonebird.co.uk/pace/index.html
- Wed Aug 14, 2013 4:32 pm
- Forum: physical activity & exercise
- Topic: Abnormal muscle function in ME?
- Replies: 9
- Views: 11980
Re: Abnormal muscle function in ME?
http://www.meactionuk.org.uk/documented_pathology_seen_in_me-cfs.htm In 1983, UK researchers documented evidence of a consistent pattern of complexity, including “malaise, exhaustion on physical or mental effort, chest pain, palpitations, tachycardia, polyarthralgia, muscle pains, back pain, true ve...
- Wed Aug 14, 2013 4:28 pm
- Forum: physical activity & exercise
- Topic: Why does GET work for some and not for others?
- Replies: 7
- Views: 6338
Re: Why does GET work for some and not for others?
I believe that the people who improve with GET have chronic fatigue from a cause other than the neurological illness myalgic encephalomyelitis, which is worsened by exercise - as many of those permanently harmed by GET keep trying to tell the medical profession.
- Wed Aug 14, 2013 4:24 pm
- Forum: adult medical
- Topic: Is it possible to get Rituximab for ME on the NHS?
- Replies: 3
- Views: 2424
Re: Is it possible to get Rituximab for ME on the NHS?
The charity Invest in ME already have such a study set up apart from raising all the funding http://www.ukrituximabtrial.org/IIMEUKRT%20Summary.htm Quick Overview of the Trial • Invest in ME have initiated a UK rituximab Trial • Our advisor Professor Jonathan Edwards, Emeritus Professor of Connectiv...
- Wed Aug 14, 2013 4:21 pm
- Forum: adult medical
- Topic: dorsal root ganglionitis
- Replies: 4
- Views: 3694
dorsal root ganglionitis
Kay Gilderdale writes of her late, severely affected, daughter: "When her body was examined by the pathologist who specialised in M.E., he discovered 'dorsal root ganglionitis' - infected nerve roots - and nodules of Nageotte, which are liitle tombs of dead cells, in her spinal cord. These woul...
- Wed Aug 14, 2013 3:45 pm
- Forum: adult medical
- Topic: Transmission
- Replies: 5
- Views: 2452
Re: Transmission
Whilst there is no doubt that an acute infection is a common trigger for CFS, the question is: to what extent does chronic infection perpetuate the fatigue? I have struggled with this question for years! There is a body of evidence pointing to chronic infections such as Lyme disease, borreliosis, m...
- Wed Aug 14, 2013 3:18 pm
- Forum: adult medical
- Topic: Is ME infectious?
- Replies: 7
- Views: 5441
Re: Is ME infectious?
"WORLD HEALTH ORGANISATION (W.H.O.) DEFINITION OF M.E. ME/CFS is an acquired organic, pathophysiological, multi-systemic illness that occurs in both sporadic and epidemic forms. " The first recorded outbreaks of M.E. were in epidemic form such as at the Royal Free Hospital in 1955, and som...
- Wed Aug 14, 2013 3:09 pm
- Forum: paediatric medical
- Topic: Activity management
- Replies: 15
- Views: 12135
Re: Activity management
There is actually no evidence whatsoever that exercise improves the neurological illnessmyalgic encephalomyelitis. I suggest you contact the TYMES Trust for advice: http://tymestrust.org/ ME – the truth about exercise and therapy The Guardian, Thursday 24 February 2011 Reporting on the PACE trial of...
- Wed Aug 14, 2013 2:51 pm
- Forum: physical activity & exercise
- Topic: Old patient harmed by exercise programs
- Replies: 4
- Views: 5025
Re: Old patient harmed by exercise programs
Given the enormous number of patients with myalgic encephalomyelitis who report being harmed by graded exercise eprogrammes, some of whom report being then told that they are 'unco-operative' because they cannot continue the programme, I am absolutely horrified that it is still considered a suitable...