Search found 23 matches
- Thu Aug 15, 2013 8:30 pm
- Forum: physical activity & exercise
- Topic: severe lactic acid
- Replies: 9
- Views: 16544
Re: severe lactic acid
...I find The fact that im only offered psych help truly offensive. Just to say you are far from alone in being told that the issue is at core psychological, and far from alone in thinking that such a response is insulting and unhelpful. It is not just you. I've been lucky enough to be in a part of...
- Thu Aug 15, 2013 6:31 pm
- Forum: adult medical
- Topic: What are my odds?
- Replies: 8
- Views: 4462
Re: What are my odds?
Thank you snailspace, I'm glad to hear you are improving. I haven't discounted the possibility of either a degree of recovery or even total recovery, but my brain is somewhat unusually wired, and I'd rather do without hope than lean too hard on hope which does not them materialise. The latter, for m...
- Thu Aug 15, 2013 6:16 pm
- Forum: physical activity & exercise
- Topic: Why does GET work for some and not for others?
- Replies: 7
- Views: 6391
Re: Why does GET work for some and not for others?
Dear Cornwall 13. Thank you for this, I hadn't noticed it before: ...when I read the PACE manual for therapists for GET Pg 20, it clearly states: Aim: The aim of this treatment is to reverse the physcial inactivity that helps maintain CFS/ME, and to re-engage the participant in physical activity it ...
- Thu Aug 15, 2013 10:14 am
- Forum: adult medical
- Topic: Explaining CFS/ME to people?
- Replies: 2
- Views: 1904
Re: Explaining CFS/ME to people?
Thank you. I only had it in mind as a postcard: I know one or two friends carry it that size or little smaller, laminated. If I post a link to the picture without text, people could choose and add their own. H/w: http://i644.photobucket.com/albums/uu170/Emettman/cfs2.jpg I considered using ( CFS/ME ...
- Thu Aug 15, 2013 9:18 am
- Forum: adult medical
- Topic: Explaining CFS/ME to people?
- Replies: 2
- Views: 1904
Explaining CFS/ME to people?
This can be far from easy, and "But you don't look ill " is a frustrating comment, to put it mildly. Does anyone have preferred methods or suggestions for communicating the key features of CFS/ME to people who don't "get it" and not infrequently have wrong ideas firmly lodged in ...
- Thu Aug 15, 2013 8:00 am
- Forum: adult medical
- Topic: What are my odds?
- Replies: 8
- Views: 4462
Re: What are my odds?
Thank you. I already have that. It's not looking too good. Given that I'm three years in and can't yet say I've found a stable base-line, it being much like a limbo contest where the bar keeps being lowered on me*, it seems I'd better make not plans banking on improvement. It's a good job I'm strong...
- Thu Aug 15, 2013 7:34 am
- Forum: adult medical
- Topic: New diagnosis- what next
- Replies: 3
- Views: 1807
Re: New diagnosis- what next
" I have been advised to try pacing and graded exercise. Plus can anyone's give me any tips on the best way to manage employment effectively?" On the first this can be done well, and badly. Sound advice is needed. And on the second a support group can be well-placed for this, either live a...
- Wed Aug 14, 2013 4:33 pm
- Forum: adult medical
- Topic: Visual Disturbance in CFS/M.E-Treatment?
- Replies: 6
- Views: 2999
Re: Visual Disturbance in CFS/M.E-Treatment?
As an optometrist (retired) and someone with CFS/ME can I support Dr Shepherd's answer... The most obvious link is with fatigue and, without any new condition in the eye, the eye muscles may find it more difficult to cope with pre-existing minor imbalances, strains and errors of refraction that were...
- Wed Aug 14, 2013 4:13 pm
- Forum: adult medical
- Topic: Transmission
- Replies: 5
- Views: 2486
Re: Transmission
It is an interesting datum that while ME/CFS (and yes, I know there's a discussion right there) is now very largely seen and considered by individual cases, several of the earliest incidents leading to the recognition of the condition or conditions presented as "outbreaks". In London in 19...
- Wed Aug 14, 2013 10:22 am
- Forum: physical activity & exercise
- Topic: Abnormal muscle function in ME?
- Replies: 9
- Views: 12045
Re: Abnormal muscle function in ME?
" I was training for a half marathon before I got ME." I could spend hours in a morning dry stone walling and be called to shower before lunch before I got tired. Now just having the shower leaves me aching and needing to rest. This seems interesting. http://www.cortjohnson.org/blog/2013/0...