Search found 40 matches

Search found 40 matches
by Jessica Bavinton
Fri Aug 16, 2013 1:46 pm
Forum: physical activity & exercise
Topic: Old patient harmed by exercise programs
Replies: 4
Views: 4078

Re: Old patient harmed by exercise programs

Dear Thank you for the information. Regarding the above quote, I'm wondering how we can tell if it's going to be a temporary increase in symptoms, or an ongoing deterioration? Due to the delayed nature of post-exertional malaise, I often don't even know that I did too much until the next day, even w...
by Jessica Bavinton
Fri Aug 16, 2013 1:33 pm
Forum: physical activity & exercise
Topic: Baselines (& pacing)
Replies: 5
Views: 5143

Re: Baselines (& pacing)

Thanks goblinff There's no doubt you're going through a difficult time: a further piece of advice is as far as possible to surround yourself with positive people and interacting with people who have recovered, or are doing well with their condition. Unfortunately such people don't tend to shout abou...
by Jessica Bavinton
Fri Aug 16, 2013 11:58 am
Forum: physical activity & exercise
Topic: Flare ups.
Replies: 5
Views: 5589

Re: Flare ups.

Dr Bavington, can you explain what you mean by the following sentence? "This does mean ‘saying no’ to things that are currently significantly beyond your comfort level, but also increasing your activity when you don’t feel as good." You seem to be saying that we should not exert ourselves...
by Jessica Bavinton
Thu Aug 15, 2013 7:54 pm
Forum: adult medical
Topic: Access to a CFS Specialist
Replies: 2
Views: 1236

Re: Access to a CFS Specialist

Dear sparrowhalk The NICE Guidelines for CFS/ME give you an idea of the tests that should be done to inform your diagnosis. These are quoted below: (p140+) The following tests should usually be done: • urinalysis for protein, blood and glucose • full blood count • urea and electrolytes • liver funct...
by Jessica Bavinton
Thu Aug 15, 2013 7:45 pm
Forum: adult medical
Topic: Vitamin B12 Injections
Replies: 9
Views: 3824

Re: Vitamin B12 Injections

This might be helpful: "There is insufficient evidence for the use of supplements – such as vitamin B12, vitamin C, co enzyme Q10, magnesium, NADH (nicotinamide adenine dinucleotide) or multivitamins and minerals – for people with CFS/ME, and therefore they should not be prescribed for treating...
by Jessica Bavinton
Thu Aug 15, 2013 2:53 pm
Forum: physical activity & exercise
Topic: Why does GET work for some and not for others?
Replies: 7
Views: 5345

Re: Why does GET work for some and not for others?

Dear cornwall13 The answer to this question is currently unknown, and I know that this is a question the research community is interested to find out. My hunch (not scientifically founded) is that actually doing the programme has to be a key component - I know it sounds obvious, but unless someone a...
by Jessica Bavinton
Thu Aug 15, 2013 2:06 pm
Forum: physical activity & exercise
Topic: CFS/ME Sufferer and Sport Training
Replies: 3
Views: 4016

Re: CFS/ME Sufferer and Sport Training

Dear rungeek82 Ahhh - the clue is in the name! It sounds like you are having considerable fluctuations in your symptoms which need to be stabilised first, before you build up again. This could mean reducing to gain this stability, then moving up again. There's not a quick answer to this, but yes - y...
by Jessica Bavinton
Thu Aug 15, 2013 1:56 pm
Forum: physical activity & exercise
Topic: Light box use for energy levels?
Replies: 4
Views: 4371

Re: Light box use for energy levels?

Dear soulpoet I can't comment specifically why your GP would have recommended trying a light box, but the rationale I know is to do with the body clock. The body clock describes an (approximately) 24 hour cycle that all human beings go through and is (at least in part) responsible for feelings of wa...
by Jessica Bavinton
Thu Aug 15, 2013 1:12 pm
Forum: physical activity & exercise
Topic: Baselines (& pacing)
Replies: 5
Views: 5143

Re: Baselines (& pacing)

Dear goblinff Firstly, I'm glad to hear you've been linked into your local CFS/ME service, but hear your frustration at it being so far away, having to go through re-testing and it seeming a bit out of reach at the moment. I can't give terribly specific advice but I hope that there's a few things he...
by Jessica Bavinton
Thu Aug 15, 2013 11:49 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20758

Re: GET - useful or risky?

Hi Jessica, I hope you won't mind me asking a question as this thread seems to cover a lot of the questions I have in relation to activity and my child. We are on a GET program for him but he is relapsing every few weeks after continuous increased activity (which is prescribed on the GET program), ...
Search found 40 matches