Search found 36 matches

Search found 36 matches
by Bluebottle
Sun Aug 18, 2013 10:32 am
Forum: paediatric medical
Topic: Body 'shut down'
Replies: 7
Views: 7612

Re: Body 'shut down'

What tests could be ordered please that would reveal the physical cause of the child's seizures?
by Bluebottle
Sat Aug 17, 2013 2:45 pm
Forum: fibromyalgia
Topic: fibro and M.E.
Replies: 6
Views: 6053

Re: fibro and M.E.

My question remains unanswered, as people with severe M.E. cannot possibly undertake such activities as vacuum or attend hydrotherapy.
by Bluebottle
Fri Aug 16, 2013 9:28 pm
Forum: adult medical
Topic: Lack of treatment
Replies: 6
Views: 2317

Re: Lack of treatment

I hope you have already been tested for hyperparathyroidism which causes pain in the bones; I had this as well as M.E. and it is treatable.
by Bluebottle
Fri Aug 16, 2013 8:42 pm
Forum: paediatric medical
Topic: re immunisations
Replies: 5
Views: 4656

Re: re immunisations

this organisation are excellent at giving advice: http://www.tymestrust.org The Young ME Sufferers Trust Registered Charity 1080985 Tymes Trust is the longest established national UK service for children and young people with ME and their families. It is a respected national charity whose entire pro...
by Bluebottle
Fri Aug 16, 2013 8:40 pm
Forum: activity management in children
Topic: Cognitive impairment
Replies: 8
Views: 5586

Re: Cognitive impairment

this is an excellent organisation to turn to for advice: http://www.tymestrust.org/ The Young ME Sufferers Trust Registered Charity 1080985 Tymes Trust is the longest established national UK service for children and young people with ME and their families. It is a respected national charity whose en...
by Bluebottle
Fri Aug 16, 2013 4:09 pm
Forum: adult medical
Topic: Why is CFS/ME considered a psychiatric condition?
Replies: 7
Views: 3104

Re: Why is CFS/ME considered a psychiatric condition?

All illnesses have a 'psychological component'. Why is the psychological component of the neurological illness myalgic encephalomyelitis the only part of this devastating physical illness being researched and 'treated'?
by Bluebottle
Thu Aug 15, 2013 5:13 pm
Forum: physical activity & exercise
Topic: Why does GET work for some and not for others?
Replies: 7
Views: 5323

Re: Why does GET work for some and not for others?

Why are GET and CBT the only treatments available for our neurological illness please, particularly as many people report being made very much worse by GET? The severely affected, a quarter of all sufferers, receive no specialist treatment at all.
by Bluebottle
Thu Aug 15, 2013 3:41 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20639

Re: GET - useful or risky?

http://iacfsme.org/BULLETINFALL2011/Fall2011KindlonHarmsPaperABSTRACT/tabid/501/Default.aspx Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis ABSTRACT Across different medical fields, authors have placed a greater emphasis on t...
by Bluebottle
Wed Aug 14, 2013 9:10 pm
Forum: paediatric medical
Topic: Does my child have CFS
Replies: 15
Views: 8776

Re: Does my child have CFS

I wonder what actual proof she has of her strange claims? Tens of thousands of people suffer from the neurological illness myalgic encephalomyelitis for decades; I have. Dissociative disease is a mental health disorder. Do contact the TYMES trust for advice on this.
by Bluebottle
Wed Aug 14, 2013 4:59 pm
Forum: physical activity & exercise
Topic: Harmful Excercise
Replies: 14
Views: 10890

Re: Harmful Excercise

Documented pathology seen in ME/CFS that contra-indicates the use of Graded Exercise Therapy
Search found 36 matches