Search found 215 matches
- Wed Aug 14, 2013 2:31 pm
- Forum: adult medical
- Topic: Profound Hyperacusis
- Replies: 3
- Views: 6214
Re: Profound Hyperacusis
You clearly have a complex and serious illness that really requires 'hands on' assessment before coming to any conclusions about how all your various problems/symptoms should be managed. As we point out in our MEA management guidelines there is an urgent need for a number of specialised in-patient h...
- Wed Aug 14, 2013 2:17 pm
- Forum: adult medical
- Topic: Lack of understanding in hospitals
- Replies: 1
- Views: 1498
Re: Lack of understanding in hospitals
Karen Yes, this outdated attitude is completely unacceptable and illustrates the fact that many doctors (and nurses) in hospital, especially those working in surgery, have little in the way of up to date knowledge about research or management of ME/CFS. As part of the MEA campaign to educate the med...
- Wed Aug 14, 2013 2:03 pm
- Forum: adult medical
- Topic: Is it normal in m e for your speech to change
- Replies: 6
- Views: 3253
Re: Is it normal in m e for your speech to change
Part of what we call cognitive dysfunction - which is very common in ME/CFS and involves problems with short term memory, concentration, information processing etc - can also include mixing up words and forgetting words. But significant changes in the way you articulate speech - for example slurring...
- Wed Aug 14, 2013 1:00 pm
- Forum: adult medical
- Topic: Adrenal fatigue in ME
- Replies: 3
- Views: 2409
Re: Adrenal fatigue in ME
Charlotte First of all you need to confirm (through proper investigations) that you have a significant abnormality in adrenal gland function If so, this should then be discussed with an endocrinologist (hormone expert) This is not an area for self-treatment and I am not aware of any evidence support...
- Wed Aug 14, 2013 12:56 pm
- Forum: adult medical
- Topic: Over the counter subsitute for Imunovir
- Replies: 2
- Views: 1711
Re: Over the counter subsitute for Imunovir
As there isn't any evidence from good quality clinical trials regarding safety and benefits of Imunovir in ME/CFS, and NICE do not recommend the use of immunoglogical treatments, this is not a treatment that is going to be prescribed on the NHS. Speaking as a doc with personal experience of ME/CFS, ...
- Wed Aug 14, 2013 12:41 pm
- Forum: adult medical
- Topic: balance with me
- Replies: 1
- Views: 1670
Re: balance with me
Molly Problems with balance are a very characteristic feature of ME/CFS and there has been some research carried out. This indicates that in some cases this may be caused by what is called vestibular dysfunction. If you want to follow this research up there is more information in the MEA booklet: ME...
- Wed Aug 14, 2013 12:31 pm
- Forum: adult medical
- Topic: Adrenal fatigue in ME
- Replies: 3
- Views: 2409
Re: Adrenal fatigue in ME
Charlotte One of the most consistent research abnormalities to be reported in ME/CFS is a disturbance in the hypothalamic-pituitary-adrenal (HPA) axis - a complicated hormonal cascade that controls the output of cortisol from the adrenal glands - that sit above the kidneys. If you want to follow thi...
- Wed Aug 14, 2013 12:17 pm
- Forum: adult medical
- Topic: Is it normal in ME to collapse?
- Replies: 3
- Views: 2053
Re: Is it normal in ME to collapse?
Sarah One of the very characteristic features of ME/CFS is what we call orthostatic intolerance (OI) This means people have difficulty with standing and may feel faint, dizzy or sick when they change position to standing or try to stand upright for a long period of time OI is related to problems in ...
- Wed Aug 14, 2013 12:08 pm
- Forum: adult medical
- Topic: ME vs. MS
- Replies: 7
- Views: 4231
Re: ME vs. MS
Sally You may have seen that in another response I commented that there are a number of symptoms that are common to both ME and MS (eg central fatigue, sensory disturbances, problems with temperature control) and there are occasions when it may be difficult deciding whether someone has MS or ME My a...
- Wed Aug 14, 2013 12:01 pm
- Forum: adult medical
- Topic: Is it possible to get Rituximab for ME on the NHS?
- Replies: 3
- Views: 2424
Re: Is it possible to get Rituximab for ME on the NHS?
Charlotte There are several discussions taking place about Rituximab on the MEA Facebook page: https://www.facebook.com/pages/ME-Association/171411469583186 where I have been answering lots of questions over the past week or so. The MEA Ramsay Research Fund has set aside almost £60,000 in research f...