Search found 40 matches

Search found 40 matches
by Jessica Bavinton
Thu Aug 15, 2013 11:37 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20782

Re: GET - useful or risky?

I was on the PACE trial at Kings, on CBT. But it didn't really work for me, so per the Trial terms, they offered me Pacing instead, but didn't have the staff, so we talked about GET but I was too scared to try it. They did send me a booklet on Graded Exercise, published by the NHS and written partl...
by Jessica Bavinton
Wed Aug 14, 2013 5:28 pm
Forum: physical activity & exercise
Topic: Harmful Excercise
Replies: 14
Views: 10954

Re: Harmful Excercise

Sometimes people are concerned by what they have read online, or by someone else affected by their condition: people perhaps saying ‘exercise made me worse’, for example. Then, on the other hand you have the NHS promoting GET, and GET being supported by NICE guidelines and research. Very confusing. ...
by Jessica Bavinton
Wed Aug 14, 2013 5:15 pm
Forum: physical activity & exercise
Topic: National Outcomes Database (NOD)
Replies: 3
Views: 3158

Re: National Outcomes Database (NOD)

Hello Cornwall13 A good question, and one that the NHS community is aware of and trying to address. We don't know for sure, but I suspect a few things are at play: I suspect therefore that in some cases, what is being provided by the NHS is different from the PACE trial, and therefore can't be easil...
by Jessica Bavinton
Wed Aug 14, 2013 4:08 pm
Forum: physical activity & exercise
Topic: Flare ups.
Replies: 5
Views: 5594

Re: Flare ups.

Dear Alyx It’s hard to answer your question too specifically, as a full assessment would help to work out what exactly is contributing to your fatigue (everyone’s different), and hence help to work out what can be done to improve your energy levels. However, you are describing what’s ‘known in the t...
by Jessica Bavinton
Wed Aug 14, 2013 12:50 pm
Forum: physical activity & exercise
Topic: Baselines (& pacing)
Replies: 5
Views: 5146

Re: Baselines (& pacing)

Dear goblinff

There is a way forwards with the situation you're in, and I will offer some thoughts tomorrow when I have some more time to focus on what you need.
by Jessica Bavinton
Wed Aug 14, 2013 12:26 pm
Forum: physical activity & exercise
Topic: Old patient harmed by exercise programs
Replies: 4
Views: 4081

Re: Old patient harmed by exercise programs

Dear Flopsyrab I was sorry to hear that your physical functioning got worse the more did during your exercise programme. Understandably you would want to know more about what happened. A couple of points worth noting: • A GET programme is a mutually negotiated programme, with you at the centre of th...
by Jessica Bavinton
Wed Aug 14, 2013 12:09 pm
Forum: diet
Topic: Diet
Replies: 10
Views: 8130

Re: Diet

Thanks, Mariane123 for asking for published research for informing our answers! As you know, when looking into these concepts (and all treatments and theories), it’s important to understand the quality of the research published, the background of the study, and the scientific methodology behind it. ...
by Jessica Bavinton
Wed Aug 14, 2013 11:58 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20782

Re: GET - useful or risky?

Thanks laelowse I agree, the evidence in favour of GET significantly outweighs any anecdotal evidence against. What's important is that the programme is delivered according the NICE guidelines and PACE protocol. I'd suggest looking up BACME: http://www.bacme.info/localservices/ Find your nearest NHS...
by Jessica Bavinton
Wed Aug 14, 2013 11:44 am
Forum: physical activity & exercise
Topic: Abnormal muscle function in ME?
Replies: 9
Views: 10559

Re: Abnormal muscle function in ME?

Dear clare35 There is evidence of weak muscles, deconditioning, reduced heart size, and a reduction in mitochondria (a component of cells associated with energy). However, once scientific studies have taken into account deconditioning and abnormal perception of effort, muscle function is in fact nor...
by Jessica Bavinton
Wed Aug 14, 2013 11:14 am
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20782

Re: GET - useful or risky?

Dear laelowse Thank you for your post as it reflects questions and concerns that many people have about Graded Exercise Therapy. Sometimes people are concerned by what they have read online, or by someone else affected by their condition: people perhaps saying ‘exercise made me worse’, for example. ...
Search found 40 matches