You are correct this is currently on hold pending the outcome of an independent review chaired by Baroness Cumberlege. This is likely to be the case at least until the end of the year. The latest publication is linked below (BMJ article from last week)

https://www.bmj.com/content/365/bmj.l1842

Yes - I see a handful of cases per year. Sometimes responds to hormonal treatment, other cases need surgery. There are UK endometriosis centres that would deal with this
See link below
https://www.bsge.org.uk/data-for-bsge-a ... s-centres/

The recently published ANTIC trial has shown that a daily preventative antibiotic can reduce UTIs by 50% in ISC patients - worth considering? See link below

https://www.thelancet.com/journals/lani ... 2/fulltext

There are a host of ISC catheters available - perhaps trial a few different types that may be more comfortable for you. Also important to make sure you are not getting catheter associated infections.

In this situation I often try and insert a larger than usual SPC - say 18 or even 20 French. The other issue is who is changing the SPC - it maybe better to have the changes in hospital if you are not already.

I would advise seeking help on this issue - initially from your GP (which you may already have done) or if necessary from a specialist paediatric urologist - sounds like further assessment should be undertaken. From the info you give my first simple test would be a post void bladder scan to see if t...

Recurrent cystitis or UTI is certainly something that you should seek help to control. It can be a huge interference with your quality of life and there are several potentially successful treatments available.

It sounds like your bladder is overactive - during periods where your conscious level drops - eg overnight/afternoon sleep this is resulting in urinary leakage - there are medications that may be able to help with that. I'm not sure what level of investigation you have had and whether you have under...

I would advise completing a bladder diary in order to investigate whether you are making too much urine at night. This is a condition called nocturnal polyuria and the treatment is different to that given for overactive bladder syndrome - this is the first step in trying to find out what the problem...

I think its a difficult issue - persuading patients to seek help for urinary incontinence is a bit of a taboo subject. It may be better to see if this individual would be willing to talk to a health care professional as we could offer alternatives to pads/containment and even prevent the incontinenc...