You are quite right to point out that there can sometimes be uncertainty and misdiagnosis in relation to Parkinson's disease - as the research abstract below illustrates: Mov Disord. 2011 Jun;26(7):1337-40. doi: 10.1002/mds.23563. Epub 2011 Mar 29. Decades of delayed diagnosis in 4 levodopa-responsi...

Regarding children and adolescents with ME/CFS: Although it is now a well established fact that ME/CFS can affect both primary and secondary school children, and has been found in a published research study to be one of the commonest causes of long term sickness absence in school, there is still a l...

If this management advice from a doctor relates to ME/CFS then it is inappropriate and potentially harmful I suggest you ask your GP if you could be referred to a hospital based ME/CFS service for informed advice on management Details of all the UK hospital based ME/CFS referral services (for both d...

You may find it helpful to look at some of the other discussions that have been taking place to questions about brain fog/cognitive dysfuntion in ME/CFS This is a reply I posted to one such question: Along with fatigue and pain, cognitive dysfunction/brain fog (= problems with memory, concentration,...

Thanks

As my colleague Dr Nigel Speight (paediatric adviser to MEA) keeps saying - the medical profession owes people with ME/CFS an apology for the way they have dealt with this illness over the years...

Paul ME/CFS is what is termed a fluctuating medical condition - meaning that symptoms and disability levels often fluctuate on an hour to hour, day to day, week to week and month to month basis The situation you are describing below, which is more like the way in which some people with MS have what ...

If you are living in an area where there is a significant amount of air pollution then this can have an adverse effect on various aspects of health - respiratory diseases like asthma in particular. Common sense suggest that air pollution could also have an adverse effect on illnesses like ME/CFS - b...

You may find it helpful to look at some of the other discussions that have been taking place to questions about brain fog/cognitive dysfuntion in ME/CFS This is a reply I posted to one such question: Along with fatigue and pain, cognitive dysfunction/brain fog (= problems with memory, concentration,...

Sarah There is certainly a role for trying to normalise a sleep routine once the period of increased sleep requirements tends to change For example, whilst it is normally helpful to have periods of rest and relaxation during the day, having short periods of sleep during the day can make it far more ...

Why is GET (graded exercise therapy) such a controversial management issue in ME/CFS? As this online clinic forum is discussing activity management and exercise I would like to make a personal contribution As a doc with longstanding personal experience of ME/CFS I have been involved in various aspec...