Search found 36 matches

Search found 36 matches
by Bluebottle
Wed Aug 14, 2013 4:52 pm
Forum: adult medical
Topic: dorsal root ganglionitis
Replies: 4
Views: 2898

Re: dorsal root ganglionitis

Thank you for your extensive reply.

Is there a test for this on a living person please?
by Bluebottle
Wed Aug 14, 2013 4:39 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20775

Re: GET - useful or risky?

The PACE trial researchers have also refused to publish the deterioration rates from their trial.

http://www.stonebird.co.uk/pace/index.html
by Bluebottle
Wed Aug 14, 2013 4:32 pm
Forum: physical activity & exercise
Topic: Abnormal muscle function in ME?
Replies: 9
Views: 10559

Re: Abnormal muscle function in ME?

http://www.meactionuk.org.uk/documented_pathology_seen_in_me-cfs.htm In 1983, UK researchers documented evidence of a consistent pattern of complexity, including “malaise, exhaustion on physical or mental effort, chest pain, palpitations, tachycardia, polyarthralgia, muscle pains, back pain, true ve...
by Bluebottle
Wed Aug 14, 2013 4:28 pm
Forum: physical activity & exercise
Topic: Why does GET work for some and not for others?
Replies: 7
Views: 5349

Re: Why does GET work for some and not for others?

I believe that the people who improve with GET have chronic fatigue from a cause other than the neurological illness myalgic encephalomyelitis, which is worsened by exercise - as many of those permanently harmed by GET keep trying to tell the medical profession.
by Bluebottle
Wed Aug 14, 2013 4:24 pm
Forum: adult medical
Topic: Is it possible to get Rituximab for ME on the NHS?
Replies: 3
Views: 1786

Re: Is it possible to get Rituximab for ME on the NHS?

The charity Invest in ME already have such a study set up apart from raising all the funding http://www.ukrituximabtrial.org/IIMEUKRT%20Summary.htm Quick Overview of the Trial • Invest in ME have initiated a UK rituximab Trial • Our advisor Professor Jonathan Edwards, Emeritus Professor of Connectiv...
by Bluebottle
Wed Aug 14, 2013 4:21 pm
Forum: adult medical
Topic: dorsal root ganglionitis
Replies: 4
Views: 2898

dorsal root ganglionitis

Kay Gilderdale writes of her late, severely affected, daughter: "When her body was examined by the pathologist who specialised in M.E., he discovered 'dorsal root ganglionitis' - infected nerve roots - and nodules of Nageotte, which are liitle tombs of dead cells, in her spinal cord. These woul...
by Bluebottle
Wed Aug 14, 2013 3:45 pm
Forum: adult medical
Topic: Transmission
Replies: 5
Views: 1695

Re: Transmission

Whilst there is no doubt that an acute infection is a common trigger for CFS, the question is: to what extent does chronic infection perpetuate the fatigue? I have struggled with this question for years! There is a body of evidence pointing to chronic infections such as Lyme disease, borreliosis, m...
by Bluebottle
Wed Aug 14, 2013 3:18 pm
Forum: adult medical
Topic: Is ME infectious?
Replies: 7
Views: 4511

Re: Is ME infectious?

"WORLD HEALTH ORGANISATION (W.H.O.) DEFINITION OF M.E. ME/CFS is an acquired organic, pathophysiological, multi-systemic illness that occurs in both sporadic and epidemic forms. " The first recorded outbreaks of M.E. were in epidemic form such as at the Royal Free Hospital in 1955, and som...
by Bluebottle
Wed Aug 14, 2013 3:09 pm
Forum: paediatric medical
Topic: Activity management
Replies: 15
Views: 10410

Re: Activity management

There is actually no evidence whatsoever that exercise improves the neurological illnessmyalgic encephalomyelitis. I suggest you contact the TYMES Trust for advice: http://tymestrust.org/ ME – the truth about exercise and therapy The Guardian, Thursday 24 February 2011 Reporting on the PACE trial of...
by Bluebottle
Wed Aug 14, 2013 2:51 pm
Forum: physical activity & exercise
Topic: Old patient harmed by exercise programs
Replies: 4
Views: 4081

Re: Old patient harmed by exercise programs

Given the enormous number of patients with myalgic encephalomyelitis who report being harmed by graded exercise eprogrammes, some of whom report being then told that they are 'unco-operative' because they cannot continue the programme, I am absolutely horrified that it is still considered a suitable...
Search found 36 matches