Search found 40 matches
- Thu Aug 15, 2013 11:37 am
- Forum: physical activity & exercise
- Topic: GET - useful or risky?
- Replies: 40
- Views: 26062
Re: GET - useful or risky?
I was on the PACE trial at Kings, on CBT. But it didn't really work for me, so per the Trial terms, they offered me Pacing instead, but didn't have the staff, so we talked about GET but I was too scared to try it. They did send me a booklet on Graded Exercise, published by the NHS and written partl...
- Wed Aug 14, 2013 5:28 pm
- Forum: physical activity & exercise
- Topic: Harmful Excercise
- Replies: 14
- Views: 12974
Re: Harmful Excercise
Sometimes people are concerned by what they have read online, or by someone else affected by their condition: people perhaps saying ‘exercise made me worse’, for example. Then, on the other hand you have the NHS promoting GET, and GET being supported by NICE guidelines and research. Very confusing. ...
- Wed Aug 14, 2013 5:15 pm
- Forum: physical activity & exercise
- Topic: National Outcomes Database (NOD)
- Replies: 3
- Views: 4177
Re: National Outcomes Database (NOD)
Hello Cornwall13 A good question, and one that the NHS community is aware of and trying to address. We don't know for sure, but I suspect a few things are at play: I suspect therefore that in some cases, what is being provided by the NHS is different from the PACE trial, and therefore can't be easil...
- Wed Aug 14, 2013 4:08 pm
- Forum: physical activity & exercise
- Topic: Flare ups.
- Replies: 5
- Views: 6672
Re: Flare ups.
Dear Alyx It’s hard to answer your question too specifically, as a full assessment would help to work out what exactly is contributing to your fatigue (everyone’s different), and hence help to work out what can be done to improve your energy levels. However, you are describing what’s ‘known in the t...
- Wed Aug 14, 2013 12:50 pm
- Forum: physical activity & exercise
- Topic: Baselines (& pacing)
- Replies: 5
- Views: 6293
Re: Baselines (& pacing)
Dear goblinff
There is a way forwards with the situation you're in, and I will offer some thoughts tomorrow when I have some more time to focus on what you need.
There is a way forwards with the situation you're in, and I will offer some thoughts tomorrow when I have some more time to focus on what you need.
- Wed Aug 14, 2013 12:26 pm
- Forum: physical activity & exercise
- Topic: Old patient harmed by exercise programs
- Replies: 4
- Views: 5158
Re: Old patient harmed by exercise programs
Dear Flopsyrab I was sorry to hear that your physical functioning got worse the more did during your exercise programme. Understandably you would want to know more about what happened. A couple of points worth noting: • A GET programme is a mutually negotiated programme, with you at the centre of th...
Re: Diet
Thanks, Mariane123 for asking for published research for informing our answers! As you know, when looking into these concepts (and all treatments and theories), it’s important to understand the quality of the research published, the background of the study, and the scientific methodology behind it. ...
- Wed Aug 14, 2013 11:58 am
- Forum: physical activity & exercise
- Topic: GET - useful or risky?
- Replies: 40
- Views: 26062
Re: GET - useful or risky?
Thanks laelowse I agree, the evidence in favour of GET significantly outweighs any anecdotal evidence against. What's important is that the programme is delivered according the NICE guidelines and PACE protocol. I'd suggest looking up BACME: http://www.bacme.info/localservices/ Find your nearest NHS...
- Wed Aug 14, 2013 11:44 am
- Forum: physical activity & exercise
- Topic: Abnormal muscle function in ME?
- Replies: 9
- Views: 12161
Re: Abnormal muscle function in ME?
Dear clare35 There is evidence of weak muscles, deconditioning, reduced heart size, and a reduction in mitochondria (a component of cells associated with energy). However, once scientific studies have taken into account deconditioning and abnormal perception of effort, muscle function is in fact nor...
- Wed Aug 14, 2013 11:14 am
- Forum: physical activity & exercise
- Topic: GET - useful or risky?
- Replies: 40
- Views: 26062
Re: GET - useful or risky?
Dear laelowse Thank you for your post as it reflects questions and concerns that many people have about Graded Exercise Therapy. Sometimes people are concerned by what they have read online, or by someone else affected by their condition: people perhaps saying ‘exercise made me worse’, for example. ...