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Hi,
It's taken 8 months for me to get a diagnosis of Exfolliative Cheilitis, after a first biopsy showed actinic cheilitis which was then treated with Immiquod, then Efudix, then because still no improvement, a second biopsy which showed just inflammation and a thrush infection. Been to several dermatologists and an oral medicine specialist and had patch testing,(negative). Now being treated by dermatologist who wants to see if Fluconazole and Valclovir are still hanging around, plus putting on white paraffin continually.

I have found it incredibly painful, constant burning and stinging of lips plus deep pain below my lips and tingling pain above. Do other people find it painful and what pain relief has helped?

Is there anyone else who has this condition and if so what treatment have you had? Have you found that white paraffin is successful at keeping lips moisturized?

I am so sorry to hear about your chelitis! It can be incredibly painful!
Have you tried steroid ointemnst such as Eumovate and also tacrolimus ointment?

I hope this is helpful.
With Best Wishes,

Dr Anton Alexandroff FRCP(UK) PhD CCT(Derm) FRSM FAAD
Consultant Dermatologist and Honorary Senior Lecturer
The British Skin Foundation Spokesperson
London, Cambridge, Leicester and Bedford

http://www.alexandroff.org.uk
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