Lymphocytic Infiltration Jessner's/Timid Lupus

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Boudicca 1
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Joined: Mon Jan 18, 2021 9:01 pm
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by Boudicca 1 on Mon Jan 18, 2021 9:14 pm

Lymphocytic Infiltration Jessner's/Timid Lupus

I have this rare skin condition that seems to depend on which school the Dermatologist's has been to so it's take your pick as both are as good as identical so the medical scientist argue one way or the other leaving those of us patience with it up a creek without a paddle There appears to no research in the UK that I can find but then if it's rare I guess they don't have enough patience to follow.
I can't be the only person with this frustrating condition but with the lack of knowledge and help I'm starting to think so.

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Dr Anton Alexandroff
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by Dr Anton Alexandroff on Wed Jan 20, 2021 7:51 pm

Re: Lymphocytic Infiltration Jessner's/Timid Lupus

Dear Boudicca,

So sorry to hear about your problem. It is rare but you are not alone!

Here is a good link about your condition
https://dermnetnz.org/topics/jessner-ly ... infiltrate

I hope this is helpful.
With Best Wishes,

Dr Anton Alexandroff FRCP(UK) PhD CCT(Derm) FRSM FAAD
Consultant Dermatologist and Honorary Senior Lecturer
The British Skin Foundation Spokesperson
London, Cambridge, Leicester and Bedford

https://www.alexandroff.org.uk/

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Dr Anton Alexandroff
Consultant Dermatologist, Honorary Senior Lecturer & BSF spokesperson - FRCP, CCT (Derm), PhD, FRSM, FAAD

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Boudicca 1
Posts: 2
Joined: Mon Jan 18, 2021 9:01 pm
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by Boudicca 1 on Thu Jan 21, 2021 3:54 pm

Re: Lymphocytic Infiltration Jessner's/Timid Lupus

Thank you for your reply, yes I have/had checked the site you referred me to some year's ago and read a lot of medical paper's on the subject.
Sadly none of it is much if any help especially if as a patient you've had it for well over 6 years, plus they state that it does not itch- I can tell inform you and them that at time's you can feel when they are about to erupt as it feel's like a prickle in the skin as if someone is using a very small needle to stick into you at time one spot will itch like crazy but you don't scratch it because it burn's and hurt a lot.
So where are the expert's in the UK or are they just reading the New Zealand Dermatology site.
Sorry if that sound's harsh it's not meant to but after all these years despite three monthly appointments with their photographing of the offending rash I'm feel more like some side show freak now rather than a patient with a proper concern.
Guess it's time to discharge myself.

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