LS spreading - non-responsive to treatment
Posted: Mon May 10, 2021 12:16 pm
Hi, I am wondering what the protocol is for treatment when steroid ointment is failing to stop the spread of the LS - in my case white patches. I have been using the clobetasol 0.05% daily since February, following the advice from Dr Goldstein to soak the area first for 10 min in luke warm water , or at least after a shower and then gently massage ointment in to the area for 2 mins. No soap etc. I do this over the entire vulva area. Then apply a Danish brand fat cream similar to hydromol (Dr. Warming - containing paraffin) 30 mins later. I notice the white patches continue to spread despite diligent maintaining. I keep the area moist all day with aveeno also. I am trying some oils such as olive oil. Apparently coconut is drying. I soak in Epsom salts a couple of times a week too. The LS is also 'at the back'. And I have some with fusing around urethra and by perineum meaning dyspareunia. My gynecologist recommended I alternate between clobetasol and 0.03% protopic tacrolimus, since a month ago. The same time I was given 0.1%ovestin which I apply to whole vulva area. Gynecologist said there was some atrophy due to clobetasol.
Is there anything else that can be tried. I am 40 now, but had the symptoms since at least 37. Strength of ointments increased? Is tracolimus even recommended?
Many thanks indeed.
Is there anything else that can be tried. I am 40 now, but had the symptoms since at least 37. Strength of ointments increased? Is tracolimus even recommended?
Many thanks indeed.
