Maintenance & continuing erosion
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- Posts: 1
- Joined: Sat Feb 05, 2022 9:39 pm
Maintenance & continuing erosion
When I was diagnosed by a gynaecologist in 2020 I had very advanced whitening and some erosion. I was on Dermovate for 6 months to clear the whiteness and also prescribed Betnovate and 1% hydrocortisone, the latter to be used every day unless I had a flare.
I had to stop this as it was making me very sore, so I am using the Dermovate twice a week.
However, I now have no labia minora or clitoral hood. My perineum has all but disappeared and my anus feels very tight.
I have no follow ups and my surgery doesn’t see patients if they can get away with it.
I’m not sure what the future holds and I’m quite scared about this.
I had to stop this as it was making me very sore, so I am using the Dermovate twice a week.
However, I now have no labia minora or clitoral hood. My perineum has all but disappeared and my anus feels very tight.
I have no follow ups and my surgery doesn’t see patients if they can get away with it.
I’m not sure what the future holds and I’m quite scared about this.
- Dr Karen Gibbon
- Posts: 36
- Joined: Wed May 06, 2020 12:28 pm
Re: Maintenance & continuing erosion
I'm sorry to hear that you've been having difficulty accessing correct follow up. Please speak to your GP practice again and ask for a face to face appointment to discuss your concerns. It is your right to ask for this. using dermovate twice a week is likely to be the best form of maintenance therapy for you once any acute flares are under control. I personally don't find hydrocortisone or betnovate as effective for acute flares.