Supporting my eczema child

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eddiesskin
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Joined: Mon Aug 07, 2023 2:44 am
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by eddiesskin on Wed Sep 13, 2023 8:04 pm

Supporting my eczema child

Hi,
How do I support my child who has severe atopic dermatitis? She can’t really wean down from using topical steroids, uses topical immunosuppressants regularly and is on methotrexate to manage her irritation. Our house has become pretty miserable over the past year where me and my husband are losing hope in anything improving, my daughter has had enough and is being unbelievably defiant in the care we are trying to give her. She refuses to put any creams on so we have to force it, which turns into an argument and everyone gets upset and angry. We’re all tired from sleepless nights. My husband and I are slightly resentful (but not meaning to be) due to how much her condition limits our life, and it’s just breaking our family. Im so conscious of my daughters mental wellbeing alongside a condition that is extremely unfair and frustrating. Can you offer any advice for us as there is very limited support for parents who care for children with eczema? Do we leave her to scratch then constantly pick up the pieces and comfort a sore, bleeding child who regularly gets infections or do we continue to inform her of the risks of infection/need for moisturising her skin/finding distractions, to be met with anger and frustration from my 6 year old?

Dr Penelope Pratsou
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Joined: Thu Sep 08, 2022 3:15 pm
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by Dr Penelope Pratsou on Fri Sep 22, 2023 7:05 pm

Re: Supporting my eczema child

Good afternoon,

First of all can I just say how sorry I am to hear how incredibly difficult things have been for you, your daughter and your family.

Atopic dermatitis, especially when active, can cause a lot of physical discomfort but also affect mood and sleep, as you well know. If she is already on methotrexate, I wonder whether her dermatologist is aware of these symptoms and can tweak her methotrexate dose further or suggest alternatives if appropriate.

Some dermatology departments have specialist nurses who can help support families, demonstrate application of creams and try different emollients, helping children get involved in their skin routine.

Some dermatology centres also offer psychological support and services to patients, which your daughter and family may find useful. I would share your frustrations with her dermatology team to see what may be available in your area.

Finally, I would suggest looking at the National Eczema society webpage for local support groups if you have not already done so.

Best Wishes,
Dr Penelope Pratsou

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