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Chronic disease

Posted: Wed Oct 28, 2020 1:43 pm
by UnicornLiving
I have Syringomyelia. It's tough. I'm 21 years old and I've had surgery 5 times. I've had this disease since I was 6. It changed my life so much that I dont even know what it's like to be normal anymore. I suffer with alot of pain, sometimes I can barely walk or move my hands. Some days I just wish I was never born. I have really bad anxiety due to this. I dread to think about my future.

Re: Chronic disease

Posted: Mon Nov 02, 2020 11:09 am
by talkhealth
Hello Unicorn living - we are so sorry to hear of your condition and thus the pressures that you have to live with. There seems to be a few places that can offer support which you may have already used such as the Brain Charity - 0800 008 6417 (Monday-Friday: 9am-4.30pm) which may be a good place to start in finding support. The other main charity - https://www.annconroytrust.org/ available looks like they have had to close at the moment - but they do have a lotof very useful information on their website along with specialists in this subject.

Re: Chronic disease

Posted: Fri Dec 04, 2020 10:02 am
by TookyTooker
Bro, I hope that you will live better int he future!